I’m 24F, and I wanted to share my health journey on different forums in hopes of finding others who have experienced something similar. This past year has been one of the most physically and emotionally exhausting experiences of my life, and I’m honestly starting to feel defeated. I apologize in advance for the lengthy post.
How it all started:
In July 2025, I developed my first ever UTI. I was treated with antibiotics and thought that was the end of it. Then in September, I developed another UTI and was treated again because my doctor suspected the first infection hadn’t completely cleared. Unfortunately, my symptoms never truly went away.
I began experiencing what I describe as “phantom urinary urgency.” Even after emptying my bladder, I would still feel like I needed to pee. I also started developing pelvic pain after intercourse that felt like a deep, searing, burning nerve pain.
My urinary symptoms have always followed a strange pattern. They’re typically worse when I’m lying down, especially at night and first thing in the morning. They often improve once I get up and start walking around. The symptoms come and go, sometimes seemingly without reason, and intercourse can trigger a flare up.
My primary care doctor performed a pelvic exam and vaginal swab. I mentioned having a copper IUD, and she wondered whether an infection could be associated with it as she believed that a biofilm could have grown on it and caused an infection.
My swab came back positive for BV, something I’d never experienced before, it didn’t help that I was a asymptomatic and had no unusual odor or discharge that is usually associated with it. I’ve always wondered whether the two rounds of antibiotics I’d taken for my UTIs disrupted my vaginal microbiome and contributed to developing BV.
I was treated with antibiotics oral metronidazole for BV, but my pain urinary symptoms and pelvic pain actually worsened while taking them, and even after finshing treatment i didn’t have relief.
Months of appointments and no answers
Eventually, I saw a urologist after waiting months for an appointment. By then, I was experiencing pain almost daily, particularly when trying to sleep. Painkillers barely helped, and heating pads only provided slight relief.
My urine tests and bladder emptying test were normal. After a pelvic exam, the urologist suspected a hypertonic pelvic floor and referred me to pelvic floor physical therapy. I attended PT for months without much improvement.
At this point, I was becoming incredibly frustrated. I was constantly uncomfortable, losing sleep, researching symptoms, and desperately trying to understand what was happening to my body. Every appointment felt like another dead end. I was spending so much time and energy trying to find answers, only to be told that everything looked normal.
Eventually, I decided to see a urogynecologist because I couldn’t even tell whether this was a urinary or gynecological problem anymore. During my examination, he felt my pelvic floor tension was normal, but he also discovered that my copper IUD had become lodged in my cervix.
I’d had it for almost five years without any major issues, so I had no idea how long it had been displaced.I had it removed the following week, and for a couple of months, I finally felt normal again. I genuinely thought I’d found the answer.
Unfortunately, the pain and urinary urgency eventually returned. I returned to my OB-GYN, where my standard STI panel came back negative.
A pelvic ultrasound showed:
An enlarged right ovary with multiple follicles,
A corpus luteum cyst on my left ovary,
Prominent pelvic blood vessels suggesting possible pelvic congestion syndrome (PCS)
To this day, I don’t know whether any of these findings actually contributed to my symptoms or whether they were incidental. PCS was suggested as a possible explanation, but I never received confirmation that it was the cause.
Around this time, I had also decided I wanted permanent sterilization as my iud journey didn’t end well and I don’t tolerate hormones so I scheduled a bilateral salpingectomy (removal of my fallopian tubes). I figured the surgery would also provide an opportunity to investigate whether anything abnormal was happening internally. During surgery, everything looked relatively normal externally, although my surgeon noticed my fallopian tubes appeared unusually twisted and congested.
It wasn’t until pathology examined my removed tubes that we discovered chronic salpingitis, meaning long standing inflammation of my fallopian tubes.
My surgeon suspected an underlying infection and tested me for Ureaplasma. I tested positive for Ureaplasma parvum, something that hadn’t been included in my previous standard STI screenings.
Both my partner and I underwent doxycycline antibiotic treatment. While I was on the antibiotics for it, it made my symptoms flare up really bad which went away after I finished my treatment.
Following surgery and treatment, I experienced significant improvement. I can’t say whether removing my chronically inflamed tubes, treating the Ureaplasma, or a combination of both was responsible, but I finally started feeling substantially better.
I still experienced occasional flare ups around ovulation, during my luteal phase, and toward the end of my period, but they were much more manageable than before.
My symptoms are returning, and now my Evvy test suggests BV again
Because of everything I’d been through, I recently decided to take an Evvy vaginal microbiome test to see whether there was anything else I should be aware of. While waiting for the results, I started experiencing my familiar flare ups again: urinary urgency, bladder pressure, and pelvic discomfort. I was devastated.
My Evvy results classified my microbiome as Transitional BV.
Here were my findings:
Protective bacteria: 17%
Disruptive bacteria: 7%
Lactobacillus iners: 76% of my protective bacteria
Lactobacillus crispatus: 6% of my protective bacteria
Lactobacillus gasseri: 11% of my protective bacteria
Gardnerella species: approximately 4%
Fannyhessea vaginae: approximately 1%
My STI screening was negative for gonorrhea, chlamydia, trichomoniasis, and Mycoplasma genitalium. My recent Evvy test also came back negative for Ureaplasma, which was a huge relief considering my previous positive result for Ureaplasma parvum.
My partner and I both completed antibiotic treatment, and we’ve been avoiding unprotected intercourse while waiting for the recommended retesting interval. We’re planning to have him retested to confirm he’s negative before we resume unprotected sex.
I wanted to mention this because, although my symptoms have started returning, my latest test no longer detected Ureaplasma. This makes me wonder whether my current flare ups could be related to my disrupted vaginal microbiome, BV-associated bacteria, or something else entirely.
According to Evvy, my microbiome is disrupted, with low levels of protective bacteria and a predominance of L. iners, which is considered less stable than species such as L. crispatus.
What’s confusing is that my BV-associated bacteria seem to be present in relatively small amounts, yet I’m experiencing symptoms that feel very similar to my previous flare ups.
It’s also been over a month since I finished antibiotics for Ureaplasma, so I’m wondering whether those antibiotics caused another shift in my vaginal microbiome or whether something else is going on.
I don’t know whether BV is actually responsible for my current symptoms, but I’m hoping it might explain at least some of them.
Evvy’s treatment recommendations:
Evvy recommended discussing a treatment plan focused on reducing disruptive bacteria and rebuilding protective Lactobacillus populations.
Their suggested approaches included:
Antibiotic treatment for BV, to address BV-associated bacteria.
Boric acid vaginal suppositories, potentially to help disrupt bacterial biofilms.
Vaginal-specific probiotics, with the goal of encouraging more protective Lactobacillus species, particularly L. crispatus.
I’m currently waiting to see my OB-GYN to discuss my results and whether BV treatment is appropriate.
I’m especially interested in hearing whether anyone has tried a similar approach involving antibiotics, boric acid, and vaginal probiotics, and whether it helped prevent recurrence or improve urinary symptoms.
I’m hesitant about taking more antibiotics after everything I’ve already been through, especially because I wonder whether repeated antibiotic treatments contributed to my microbiome becoming disrupted in the first place.
I think one of the hardest parts of this journey has been how much it has taken away from me. It’s affected my sex life because intercourse can trigger pain and urinary flare ups. It’s affected my relationship because intimacy has become something I sometimes associate with discomfort or fear of another flare up.
It’s affected my sleep because my symptoms are often at their worst when I’m lying down at night. There have been so many nights when I’ve just wanted to rest but couldn’t get comfortable because of that constant sensation of needing to pee.
It’s affected my everyday life because I’m constantly thinking about my symptoms, anticipating another flare up, or trying to figure out what might be causing them.
I genuinely feel like I’ve become a shell of the person I used to be.
Before all of this, I never had to think twice about my bladder or pelvic health. Now it feels like my entire life revolves around it.
And what’s especially disheartening is that every time I finally start feeling better, something else comes up. Every time I think I’ve finally reached the end of this nightmare, I find myself right back where I started. It feels like an endless cycle, and some days it’s genuinely difficult to see a light at the end of the tunnel.
I just want to feel normal again. I want to be able to sleep peacefully, enjoy intimacy without worrying about pain afterward, and go about my day without constantly being aware of my bladder.
My questions for anyone who’s experienced something similar:
• Has anyone experienced significant urinary urgency, bladder pressure, or pelvic pain with BV, even when Gardnerella and Fannyhessea percentages were relatively low?
•Has anyone had Transitional BV or an L. iners-dominant microbiome and experienced primarily urinary symptoms rather than typical BV symptoms like odor or unusual discharge?
•Did treating BV improve your urinary urgency or pelvic pain?
•Has anyone tried a treatment approach involving antibiotics, boric acid, and vaginal probiotics? Did it help restore your microbiome or prevent recurrence?
•Has anyone experienced recurring symptoms after Ureaplasma treatment or chronic pelvic inflammation, despite initially feeling significantly better?
•For those who experienced symptoms that worsened while lying down and improved with movement, did you ever find out what was causing them?
•Has anyone continued experiencing urinary urgency or pelvic pain despite testing negative for Ureaplasma after treatment? If so, did you eventually discover another cause?
I understand that Ureaplasma can be present without causing disease, that a positive test doesn’t prove it caused my salpingitis, and that microbiome percentages alone can’t establish the cause of symptoms. I’m not looking for a diagnosis, just hoping to hear from people with similar experiences and hope I can get more pieces to this puzzle or any advice on what to look for next.
I know healing isn’t always linear, but after more than a year of this, I’m just so tired.
If you’ve made it this far, thank you for reading. I hope that sharing my experience might help someone else feel a little less alone, and I would really appreciate hearing from anyone who’s gone through something similar and eventually found relief. ❤️