So it’s moderate ME me, just out of PME, up on my feet 3 hours a day doing chores, for most of it.

So I am lying down, alone in a finally noise free home when I hear a pop. It isn’t a weird sound in the countryside here.But the direction was weird. I look out the window and the chicken coop is in fire. Flames are super high very next to conifers (like 5 metres over the 3m high coop roof) next to dead grass, and not far from the house.

When adrenaline touches me, brain fog and fatigue disappears. My brain becomes clear, confident. My health issues disappear. My pain is non existent. I was mild without knowing I had ME for years and worked in high adrenaline jobs and chose it and loved it partly, because of that feeling.

I called emergency. Gave pertinent information. Saved the 20 birds that were in the annexed aviary, running for tools to break them away, the 40 inside the coop were long gone. Always looking for debris falling and propagations, knowing that I would have to abandon the birds if it did. I actually had to leave 4 birds. I ran, fast, for the long hose, to water the trees and things around it, to avoid propagation.

I can not remember last time I ran. 2022 maybe?

A neighbour arrived and could save 2 of the 4 birds that I had to abandon to water against propagation. One of the many neighbours I had call while running around. I don’t know last time I was capable of making a phone call. I made 8.

Propagation would have been bad. If we hadn’t had rain yesterday, if it were windy at all, if I had slept or if I hadn’t act that fast, we would’ve loose all the birds, the forest, maybe the house, maybe it would have followed conifers and dry leaves to neighbours. It sounds like a theatrical exaggeration, but it is not. If it had happened last week we would have been very much fucked.

When the firetruck arrived 20 minutes after my call, firewoman me was nearly finished with extinguishing the fire. In my pink house dress with slippers. No underwear because they were filed under waste of spoons that morning.

I directed firefighters to what to do. They listened.

I can not remember last time I was a leader. 2022?

That is when I remembered that I have asthma and my most severe allergies is feather. I had grabbed birds after birds by a hole I had made because the main entrance was aflame and throw them away from the fire because they were frozen by stress and heat, stopping between birds because my arm was getting too hot. I started realising I have scratches, bruises and first degree burns. A fireman called the ambulance.

So I got in the ambulance with 160bpm. I wasn’t that surprised. Brushing my teeth is a 135bpm job. I suspect a POTS co morbidity, I had had many doses of emergency asthma pump. But they were worried for CO too, not just the heart.

Honestly I really did not want to go to the hospital. Worried for the extra spoon tax I would have to pay.

I went. Took 6 hours. I was lucky it was a day with under 100% capacity. I quickly had hear plugs. My next door (well next curtain) neighbour was given a headset because he had had an ear issue. I was surprised they had that. Doctor completely ignored my ME diagnosis saying it did not do anything for what I had. Maybe he was right. I had little CO and nothing else more than allergies and asthma. I could have stay home. Nurse said I should go home and have a glass of wine. I haven’t drank in months but maybe he was right.

I am back home, full of energy and brain function. I had a shower and multitasked.

But what I saw is the old me, that is brilliant, focused, clear headed, that can run and act and lead and multitask is still there. I am both happy and sad about it.

Fuck ME

Fuck fires

I grew up in an abusive household and cult. I was never really given proper medical care. Then in my adulthood when I went to the dr for various things I was gaslighted and told I had anxiety/depression. It was supposedly ALL the trauma.
Then I was hospitalized due to my HR not being able to go down and was told I need to exercise more. So I kept pushing and the whole time I had ME. I went from being able to walk 3 miles to struggling to walk around my house.
Right when I started healing my trauma and wanting to try to live my ME got severely worse after surgery and now I can’t even sit up for long.

I’m so sad. It’s beyond grief at this point. If I cry I will flare up more. For the first time in my life I am independent can do whatever I want. In my first relationship and my body is failing me.
I have the freedoms finally to go swimming but my body says no. I cannot live the life I have waited to live.
I beg the universe to let me atleast do what I want to do for a few hours a day and I won’t complain. Like if I can just read a book and cook myself dinner. Like those shouldn’t be big asks.
I finally have someone in my life that loves me and is supportive and I’m just rotting.

I have no willpower to go on. I stay frozen doomscrolling. My mental health is eating away at my. It feels like my body is failing me.
I am trying to keep going but I don’t think I got it in me.

Any kind words or advice is appreciated

Of course, I've had ways of "bathing in bed" that I've used to try to maintain my hygiene over the months, but this is the first proper shower that I've taken since early last December.

I'm so tired now hahaha. jfc. my arms are going to fall off. But I really had to do it.

I wish I could say that I'm proud of myself, but I'm mostly just embarrassed and drained.

EDIT: Thanks to everyone for being so sweet and encouraging. 🥹 I've been mostly asleep all day and am way too exhausted to reply to everyone, but please know that I appreciate each and every comment. I'm hoping that the PEM doesn't hit too hard and that this general exhaustion is the worst that it'll get, but we'll see. Love you guys and thank you again. ❤️❤️

Marked under accessibility/mobility aides due to the accessibility portion.

When I have a doctor visit, I get anxious and typically overdo it the day before. Weird coping mechanism im working on. I can have issues communicating and staying on track is hard. If my doctor would let me go over 292729 different things, I probably would find a way, but terribly.

Ill send a message in MyChart before my appointment with some things id like to go over, therefore its documented as well.

During the appointment, ill let them know I sent them notes for the appointment. Ive been getting praise for it lately and love how it keeps us on track.

This is great if your doctor uses a similar platform and youre not feeling the best to write down a physical note. I think its a bit easier on their note taking too. I wish every provider used something like this.

Edit to add a note from comments: this is a great option if your provider actually utilizes it. I wish more did because its literally an accommodation. Phone calls make me crash.

I have had ME for 2 years now, diagnosed for a year and a half, my mum knew it was that before I was diagnosed. I was 16 upon diagnosis, now I am 18. I had to drop one college subject, then another, then get pushed behind in another. I completed my music course last year but had to miss the exam because I was so unwell- I hadn't long come out of hospital where I'd been for 2 weeks on a feeding tube, as I'd pushed myself in exam season and to do a performance in my band, and thrown myself into a massive flare up, too weak to eat. The speech and language therapist who demanded I have a tube put in has a wife with ME, so thankfully he understood. He said he worried that if I kept pushing myself I would end up bedbound long term like his wife.

At the moment, I spend most of my time at home. My physio gets me to do very small walks, maybe about 20m, daily, but i skip them on bad days- its just not safe unless my mum can come with me. I study history from home, and sometimes my partner takes me on the bus to see town or to go to her house in another city, where i spend most of my time lying in her bed, but its a nice change of scenery.

Sometimes, if I've been managing my symptoms well, I forget I have ME, or think I'm faking. Got hit with PEM today so got a reminder that this is actually real- feeling feverish, weak, fullness in my head. It doesnt help that my brother keeps trying to push me past my limits and says i should be walking more- he thinks my mindset makes me more unwell. I understand that can happen and I am mentally unwell but that more commonly makes me push myself in the ways he wants rather than hold myself back. I think part of my feelings of denial and that I'm faking is down to how we are treated by doctors, loved ones, but especially online. My girlfriend takes me out in a wheelchair and if I have to get out to do a few steps onto a difficult bus people look at me as if ambulatory users dont exist. Its getting so hard. Sometimes I just want to give up, take myself for a run, have a nasty fall or something so people will believe me. So I will believe myself

I was hungry and thought I'd make something simple: a bagel and cream cheese. This meant I had to:

1. Walk to the pantry, get bagels, open package, pry bagel halves apart, put bagel in toaster, close up bag, return bag to pantry.
2. Walk to refrigerator, get cream cheese, bring cream cheese to kitchen table.
3. Get knife from drawer and plate from cupboard.
4. Pour glass of water.
5. Remove bagel from toaster, sit down, spread bagel with cream cheese.
6. Get cream cheese on fingers. Realize I’m out of napkins. Get up from chair, walk over to counter, grab paper towel.
7. Eat bagel (finally). 
8. Carry empty plate to sink, rinse it and put in dishwasher.

9. Return cream cheese to refrigerator.

10. Write Reddit post about how hard my life is. 😂😭

I'm moderate / severe and mostly bedbound. Lmk what activities you can do that arent on screens. Because currently social media is driving me crazy. Like it tires me so much but i cant be alone with my thoughts either lol

Tl;dr Went in person to church to speak about Open Medicine Foundation. It was hard but ultimately amazing! A big crash is undoubtedly coming but hopefully it will be worth it because folks now know more about ME and also I believe they contributed generously.

My church does a Share the Plate, sharing half of the offering each month with a nonprofit doing work consistent with our mission of love and justice. Last year, I nominated Open Medicine Foundation, and we were selected for October.

I am unable to attend church in person anymore even though I've been a member for 10 years and used to serve as a lay leader. Some Sundays I can't even tolerate the live stream from bed. But I reached out to our social justice coordinator and asked if he would like me to introduce the offering. He said yes, and that today would be a good day because the theme is "It's Hard to be Human," and also our fall festival would be happening after the service, which means goid attendance.

He said I could do a video but I chose to come in person. I wrote words about my illness and why OMF's work is so important. It all felt very manageable, I practiced several times and arranged with my partner to take me in a wheelchair. The staff was also great about making sure I had all I needed, like a stool at the lectern and a place near the front for my wheelchair. In the script for the person introducing me, they added a sentence to remind people not to clap until my headphones were back on.

Things started off great. My body was a little shaky of course but the words were mine and the space is very loving and familiar, so I was speaking confidently. But about halfway through, my nervous system went completely haywire. I started shaking so hard I couldn't speak, couldn't catch my breath, and started crying even though I didn't actually feel emotional. I just kept taking deep breaths and signaled to my partner to come up so I could lean against him.

And I didn't give up. I took all the time I needed without apology, which feels like one more way to embody disability justice work. The whole congregation kept radiating patience and gentleness. It was amazing to look out at all those faces just warmly holding me and my story.

When I finished I reached around to put on my headphones, but looked up to see the entire congregation silently applauding with their hands in the air. I nearly burst into tears for real!

Anyway, it was intense but so worth it. There's still one more Sunday for collecting so we won't know till the end of the month how much was raised but I hope that my being there boosted the contributions.

Our social justice coordinator timed it to land when Open Medicine Foundation does its Triple Giving November. That means that when we sends in our contribution next month it will be triple matched!

My primary care physician's office has twice tried to refer me to an ME/CFS specialist in the Seattle area.

I think whoever is doing the referral isn't researching anything.

The first referral (July) was to a neuro-something doctor. When my caregiver called to make an appointment, she was told they don't treat patients with ME/CFS, fibromyalgia or long covid.

Second referral (September) was to a neuro-something doctor. When my caregiver called to make an appointment, she was told they only work with epilepsy patients.

Can anyone suggest a specialist in the Seattle area who does treat ME/CFS, fibromyalgia or long covid?

I actually live in Bellingham, but as far as I know, there aren't any ME/CFS specialists up here in Whatcom county.

​

My sister has had ME/CFS for over 2 years and is approaching the severe end (mostly home bound (gone out like 7 timres this year, occasionally bed bound, paralysis episodes). I want to learn how to be a better sister and support her without accidentally making things harder.

I had a daughter this summer, and my sister absolutely adores her. Spending time with my baby brings her so much joy, but even holding her or getting excited can come at a physical cost. She wants company but is also afraid of PEM and losing progress.

I struggle with knowing what to offer when she doesn't always know what she needs herself. I also want to know how to respond when she shares her grief about everything she's lost without trying to fix it or tell her to stay positive.

One thing I especially struggle with is navigating her desire for company while respecting her fear of PEM. She genuinely wants to socialize, but sometimes her excitement and desire to connect seem to lead her to overexert herself. She also has trouble figuring out her limits and setting boundaries in the moment.

I usually follow her lead because I don't want to be controlling or make decisions for her, but I'm starting to wonder if that unintentionally leaves her carrying all the responsibility of knowing when to stop. How can I help create opportunities for connection that feel safe and low-pressure, without treating her like she's fragile or taking away her agency?

For those with ME/CFS:

- What have family members done that genuinely helped?

- How can we offer company without making you feel pressured or obligated to socialize?

- Would you appreciate someone proactively suggesting shorter visits or helping create a natural endpoint before you get exhausted?

- What are some low-energy ways to spend meaningful time together?

- What do you wish people would say (or not say) when you're grieving everything you've lost?

- How can we support you in enjoying meaningful moments while respecting your limits, without making you feel restricted or assuming we know your body better than you do?

I love my sister and want her to feel supported, believed, and less alone. I'd really appreciate hearing about your experiences, including things family members may have done with good intentions that weren't actually helpful.

Hey all, i had a question to see if any of you are like me.

It seems like my dysautonomia is the actual powertrain of my ME. I’m in a terrible crash right now as of 10 days ago. I’ve gone from moderate to probably severe. I’m in bed 23.5 hours a day.

I don’t have flu symptoms, or pain, or insomnia; and i never have. It feels like 99% of my issues are from orthostatic intolerance, tinnitus, blurry vision, my head feeling woozy, and just feeling out of it. If my OI and lightheadedness went away I’m certain i would be at LEAST housebound. I’ve never felt PEM in the traditional sense that i see people posting about here.

I’ve only had decreases in my baseline gradually; nothing i can link to a specific activity. However i know something is physically wrong in my body because on the days I’m feeling worse my pots is extremely aggravated. My HR got to 150 by just walking to the bathroom today.

Does anyone’s else’s ME present this way?

Had my flu jab 2 days ago and now have PEM symptoms- its not just flu symptoms its very typical for me. Do other people have this issue?

Anyone recommend?

TL;DR: Does sleep always have to be unrefreshing with ME/CFS, or can getting more sleep sometimes make you feel noticeably better? I occasionally feel significantly better after getting 10+ hours of sleep at night plus a nap, especially when I’ve been pacing well.

I’m relatively new to ME/CFS and have noticed some inconsistency in how I feel after getting a lot of sleep. I’m curious whether others experience this, too.

I have some degree of hypersomnolence, though it’s unclear whether it’s idiopathic hypersomnia (IH), narcolepsy, or related to ME/CFS. My sleep study technically met the criteria for narcolepsy, but I have a sleep specialist appointment in December to get more clarity.

For me, getting a lot of sleep means 10+ hours overnight, usually combined with a daytime nap. I try to fit in an afternoon nap every day, but sometimes life gets in the way. For example, two nights ago, I slept for about 10.5 hours and then took a nap that lasted a little over an hour. After all that sleep, I felt noticeably better than usual: less brain fog, more alert, and more energetic. I wasn’t completely refreshed, but the difference was significant.

It’s frustrating that I seem to need nearly 12 hours of sleep in a 24-hour period just to function relatively well. That said, I know some people with ME/CFS need even more sleep than that. And by “well,” I still mean that I need to pace myself and be careful not to overdo it, even on better days.

I’m also aware that I’ve been pacing more effectively over the past few days, which may be contributing to how much better I felt. So I’m wondering how much of a role sleep itself plays versus the effects of pacing.

For those with ME/CFS, is your sleep always unrefreshing, or do you sometimes feel noticeably better after getting “enough” sleep? (I know “enough” sleep varies considerably per person depending on severity.)

Hello Long Hauler fam,

☀️ Here are 6 research findings, some funding wins, 1 thought, and 1 question to consider this week - plus a doggy pic 🐶

My last post was two months ago (sorry! life!), so there’s a bit more than usual.

None of these are treatments you can get today, but bit by little bit they made me feel the field is slowly getting more precise.

Don’t have spoons for the full read?
The first item and the thought at the end are probably the best bits
(and the doggy pic, of course!).

I. Bezisterim results are in - small overall, but interesting in some groups

Last time I said the ADDRESS-LC trial of bezisterim should be reporting soon. BioVie has now shared early results.

Across all 203 people, 21 of 22 measures moved in the right direction - but none by enough to count statistically.

The clearer signals came from subgroups: fatigue improved in people who started with high fatigue, and thinking improved in people with high neurological symptoms.

BUT just flagging, these results come from the company’s own webinar, they haven’t been peer-reviewed yet, and subgroup results are easier to get by chance. BioVie now wants to run a bigger phase 3 trial, which would likely take a few years.

So, something to keep an eye on. The effects across everyone were small, but trials often lump together people whose illness is driven by different things. Once we can sort patients into subgroups better, a drug like this might show much stronger effects in the people it suits.

Sources: The Sick Times · Health Rising

II. IVO-21 - a new drug that might one day help with energy problems

Dr Jay Chung at the US National Institutes of Health (NIH) has designed a brand-new drug, IVO-21, to steady our mitochondria (the cell’s power plants) when they’re under stress.

To my imperfect understanding: stressed mitochondria → leak bits of their DNA into the cell → the immune system raises the alarm → inflammation.

In animal studies it lowered inflammatory signals. In early, unpublished lab work with ME/CFS immune cells, it lowered WASF3, a protein Paul Hwang’s team has linked to poor energy production in ME/CFS.

Still very early - cell and animal work only, and we don’t yet know whether this DNA leak happens in people with ME/CFS. Human trials are probably 2-3 years away. But the NIH is backing it towards trials, and Solve M.E. has funded a mouse study.

Source: great write up by Health Rising

III. Virus hiding in the gut - for some of us

A team took gut tissue and blood samples from 44 people with Long Covid and 13 who’d recovered. They found traces of the virus in about 1 in 4 of the Long Covid group, more often in gut tissue than in blood, along with changes in local immune cells.

That “1 in 4” is another nod towards different subtypes of these illnesses - lingering virus may matter a lot for some of us and much less for others.

Flagging here that it’s a preprint (not yet peer-reviewed), the recovered group was small, and a snapshot can’t show the virus is causing symptoms. Antivirals on their own haven’t done much in trials so far. The authors suggest testing them alongside treatments for the immune problems.

Sources: The Sick Times · bioRxiv preprint

IV. Brain chemistry - dopamine and noradrenaline

Two studies looked at brain chemicals that help with motivation, movement and alertness. Interesting, even though it’s definitely only a piece of the puzzle.

Brain scans in Toronto found signs of fewer dopamine nerve endings in people with Long Covid, in patterns that matched low motivation, slower movement and memory trouble. They’re planning a trial of dopamine-boosting drugs.

An NIH study measured spinal fluid instead. It found low levels of a noradrenaline marker in ME/CFS (16 people), with a weaker, borderline signal in Long Covid (34 people). Lower levels went with a weaker grip over time. Here, dopamine looked normal - so the two studies don’t fully agree.

And lower levels don’t mean it’s the cause of our woes. It could be a downstream effect, e.g. something upstream → nerve cells short on energy → less of the chemical released → symptoms. The science isn’t settled.

If you’re thinking about trying anything that targets these chemicals, talk it through with a doctor who knows your history first - these medicines can affect heart rate and blood pressure.

Sources: ScienceDaily (Toronto) · Health Rising (NIH)

V. A window into blood vessels - through the eye

Your eyes are the window into your soul… and maybe also a way of diagnosing your disease. A German study used a painless eye scan to look at the tiny blood vessels at the back of the eye in 102 people with Long Covid and 102 who’d recovered. The Long Covid group had more abnormal vessels - most of all in people who also met the criteria for ME - and these changes went along with worse brain fog.

It’s one study, and not a test you can ask for yet. But it’s non-invasive, and it’s the kind of objective evidence that’s harder to brush off.

On a similar note, 19 experts have published a consensus statement in BMC Medicine setting out objective tests for ME/CFS (things like standing tests, sleep studies, activity tracking and exercise testing). I haven’t been able to read the full paper yet, so more on that another time. Always great to have better definitions tho!

Sources: The Sick Times · eye study · consensus statement

VI. Five illnesses, some shared wiring

A University of East Anglia team, working with the company Oxford BioDynamics, re-analysed genetic data from ME/CFS, Long Covid, PTSD, rheumatoid arthritis and MS.

Few single genes overlapped, but the wider networks they sit in did - immune signalling, energy production and the body’s hormonal stress systems.

Flag: Oxford BioDynamics is a commercial partner - I rate their science, but it’s good to know.

These are obviously distinct illnesses, but it’s still interesting to see some seemingly shared pathways.

Hopefully a rising tide lifts all boats - if a pathway can be targeted in one illness, it may help others too. That’s just my speculation, but it seems plausible for illnesses that affect so many body systems at once.

Source: ScienceDaily

Some funding wins to finish

• US$15 million for PolyBio’s Long Covid Cure Initiative - a trials network for treatments that target the underlying biology, including combinations. (PolyBio)
• Two ~€1 million grants in Vienna - Austria’s biggest ME/CFS research grants so far. One looks at why brain and muscle run short of energy (and whether extra oxygen helps), the other at whether some people diagnosed with ME/CFS have a hidden rare genetic condition. Vienna is also planning a dedicated clinic from summer 2027. (MedUni Wien)
• A blood-marker study now underway at UCL, funded by the ME Association - measuring 300+ proteins across 259 samples to find markers that set ME/CFS and Long Covid apart, or link them. Results expected by mid-2027. (ME Association)
• A new round of US RECOVER studies into how Long Covid works - subtypes, lingering virus and biomarkers. (RECOVER)

1 thought

An increasingly familiar tune this month: different people, different drivers. Bezisterim seemed to help some groups more than others, the virus showed up in about a quarter of people in one small study, and two brain studies didn’t quite agree.

I guess that’s what we’ve got to expect now - slowly matching treatments to the people they suit (although I’m still all for a breakthrough too! after all it’s the age of AI… 🤞 I’m backing both the tortoise and the hare).

1 question for you

Don’t forget, if something has helped someone else and done nothing for you, that’s not on you. You may just be in a different subgroup.

Has anything helped you that didn’t help others - or the other way round?

doggy pic 📷 the best view in the world (not talking about my slipper)

Wishing you a peaceful week,

Tom and Whisky

☺️

I am hoping to try LDA at some point but I haven’t been seen by a doctor yet who is familiar enough to prescribe. I have been seen by a private doctor in the UK, who admittedly was open to learning more about it but not comfortable prescribing it yet. And maybe the general question is- does anyone have any GPs, specialists or practitioners they find are particularly understanding or good with long covid/ ME? Or know a resource where I can find them? ( I know that’s a rarity, anyway but thought I’d ask)

Thanks in advance x

While I'm still disabled and mostly home bound, I've been doing better than I was at the beginning of the year. I finally got my sleep mostly normal-ish and I could do more things like clean my room, talk without most issues, go outside a few times a week. I still had pain and mental problems. Yesterday and today I woke up sore randomly in bed all sore in the soles of feet and legs especially, arms a little heavy. I just shoot up out of bed wired as fuck too. Just a random adrenaline rush even though I'm very tired. I thought it was just fluke but I'm definitely monitoring myself. Anyone else had this happen to them in this way? I've been self checking myself every single day, and I do have mcas histamine issues so I've been trying my best to manage that too. It's hard because I still tried to budget myself but also didn't want to succumb to horrible thinking and thoughts so I tried pushing myself very very tiny every day and I felt alright, this just hit me by a truck. I will play it safe this week, I just wanted to know your opinions. I get a sore throat when this all happens and even though I have tmjd I know that's not good at all. I hate this.

ignore the mess haha... just had to get rid of my desk due to mcas and the wood of it triggering me. which is sad. but also i didnt use it in months. which is even sadder because i'm an artist. but oh well. Here's my bedroom!

I always feel so awkward when socializing with non disabled people... and it's hard to maintain friendships with disabled people. I feel like because I have such limited energy, I have to be so thoughtful about how I spend it and where I spend it... and I feel so disconnected from healthy people. Like even basic conversations feel like I have to lie. I recently had a colleague ask me my favorite kind of music. I can't listen to any music because it causes me to crash..can't say that, so I lie and say "rock". Then they ask me if I'm traveling anywhere for the summer...I can't travel because it causes me to crash so I lie and say "mexico". I feel like I'm always lying to keep them comfortable. On the flip side, when I try to make something work with a disabled friend, we don't have our spoons align on the same day. Either I'm too sick or they're too sick to hang out...I'm just feeling weirdly lonely. People assume I decline social invitations because I don't like them but the reality is that some days I just don't have the energy to spend on frivolous things like socializing because I need it for more critical things like showering or catching up on laundry. I'm just so bummed out. My life used to be so different before the illness.

Hi all, I have an Apple Watch and have just started using the StressWatch app. I’m finding it quite good but do feel it’s missing the ability to log what I’ve physically been doing whenever I get a Pay Attention or Overload notification.

Does anyone have any recommendations for other apps that might run alongside this one or any other way of tracking it? I’m having a very difficult time getting a particular doctor to take me seriously so would like to be able to show something like…

12:30pm - Pay Attention - laying down

2:00pm - Overload - sat up, working

Hi guys, those of you that have had to be in a dark room for a prolonged period of time due to being that severe or being in a long crash, how did you do the transition to being back in a ”normally” lit room?

i'm so exhausted but doing too much. I lost so much of my baseline since the beginning of the year. Been on my phone like 10-16hrs a day the past weeks bc i needed a distraction from an ocd spiral i was in. someone pls bully me into slowing the fuck down and pacing. i dont know why i cant fucking do it. Like as if i wasnt doing bd enough (severe ish) no i need to ofc keep going to wven get worse wtf

What has helped the most with your fatigue medication wise? Thank you!