F26, 5'3lbs, 255.5lbs (was 248.1 on the 10th). Latuda, Klonopin, lamictal, Diclofenac 4x/day, Buspar, baclofen, Lyrica, duloxitine - as needed, benedryl + eyedrops. HSD + PMOS w/ insulin resistance + neuropathy + BPD
I got an incredibly horrible viral sickness about 1.5 months ago. It was not COVID or the flu. Ever since then, I have been in and out of the ER, sick as hell. Please help me, I just want to get better. I've been out of work a month now.
I have migraines that vary in location and severity, the worst of them feeling like a not-cold brain freeze that makes me incredibly nauseated. I end up shivering and chattering and out of it, as if I'm running a fever (I'm not). Everything becomes inflamed and painful in my head- my sinuses, my eyes, even the roof of my mouth- my ears ache like I've been in the cold for hours, and I have a hard time popping them.
I get dizzy, everything feels static-y when I turn my head or try to move. I feel like I am going to black out. When I bend down, the pressure in my head drastically increases. It feels as thugh I'm hanging upside down.
I gained over 7lbs in 8 days. No known edema present. EKG at hospital a week ago normal.
Hands involuntarily twitching/flexing, primarily at night.
Hallucinations. Bugs on walls in the corners of my eyes, and I keep hearing my fiance's ringtone non-stop. I attribute this to stress however.
Night terrors nightly, combined with possible sleep paralysis. I can't tell if I'm having very vivid dreams, or paralyzed. I feel like I've also gotten significantly stupider this month. I can't even remember what I've done the previous day. My fiance has to remind me.
The Diclofenac stops the worst of the symptoms, the inflammation and the dizziness. The benedryl helps with the trouble breathing and not-congestion.
Labs came back normal except for elevated WBC. MRI and CT of brain came back normal. Opthamologist reports no swelling of the optic nerve that would be typical with IHH, but we're doing an LP to be sure, and an EEG to rule out seizures.
Please help me. This cannot be my life now. I need to get better. I need this to stop.
Thank you so much.
ETA: Also keep hinging my jaw open and sideways to the right when resting, and have to crack it back into place when I notice. Not sure why I've been doing that, don't even realize I do it until I put it back.