r/Fibromyalgia • • 11h ago

Self-help How do you deal with violent men?

89 Upvotes

I have fibromyalgia and ME/CFS. During flareups/ PEM I have to use a cane.

The ammount of confrontations I'm having with men while using a cane is incredible.

When I'm not using a cane sometimes guy's will try to intimate me but all Inhavevto do to get them back down is not be intimated and give them a mean look.

When I'm using the cane confrontations are much longer and make me feel like the situation could escalate to violence at any point.

I'm thinking of counter strategys but I wanted to know if anyone had tried them and how successful they'd been.

Fimling them and puting it on Instagram #bigMenYellingAtChronicallyIllGirls. Its leagal to do that here in the UK but they could just break my phone.

Strobe light for night. I used to carry one but I lost it.

Air horn

Tagging spray (UK legal alternative to pepper spray)

Just screaming at them and hoping they wont actually hit the disabled girl

Has anyone tried any of these and can tell me if they worked or suggest anything.

De escalation has been my first choice its just failed.

Edit: For people asking more about the men. Its always drunk or druged men and city centers or in a bar club setting.

EDIT 2: Please stop recommending illegal things (like hidden bakdes). If the streets are too rough for a chronicly ill girl I'm pretty sure prison would be too.


r/Fibromyalgia • • 5h ago

Rant i feel so alone

22 Upvotes

I can’t do anything, I sit at home all day while my boyfriend works, and then we hangout for maybe an hour before I have to go lay down again or sometimes (like today) he just got home from work and then left right away. Which is fine, I want him to have his own life obviously, he needs to be with people other than me. But it feels like im always alone. My only companion is my pain. I had a massive breakdown because I just feel so alone and im so sick and tired of being in pain. I just want it to end.


r/Fibromyalgia • • 1h ago

Question Partner to Fibro/EDS woman here! Alternatives to “calorie deficit” weight loss?

• Upvotes

Heya! My girlfriend has both fibro and EDS. She’s been talking to me a lot recently about being really concerned about her health and weight. I want to emphasize that her weight isn’t and never will be a factor in how much I love her, I really do just want to see her happy again.

Here’s where I need some extra help - she has battled an eating disorder before. She started feeling a lot better after she got help and helped herself out of that.

But she talks to me like she’s on the other side of some peak in her life. We’re both 20, and she feels like her life is being stripped away from her. Reading through this subreddit I’ve seen so many people share that sentiment, but I’ve also seen so many people find hope and purpose.

I really want to support her in every way. She is my everything. But I’m scared, the only advice I’ve found for those with mobility challenges is to “count calories, count calories, count calories”
That is NOT an option. It’s such a slippery slope, and as someone who has body image and has experienced problems with food, it is absolutely the last thing I would wish upon her.

I don’t know if I’m phrasing any of this right. And there are probably a million things that she’s feeling and experiencing that I’ll never fully grasp, which is why I want to confide in this community. Literally anything would be a nice starting point.


r/Fibromyalgia • • 10h ago

Question Does anyone else get an intense, lingering burning pain if they scratch their back "wrong"?

27 Upvotes

Hi everyone,

​I wanted to see if anyone else experiences this specific symptom. Sometimes when I go to scratch a normal itch on my back, it feels like I catch a nerve or a specific spot "wrong," and it immediately triggers a long, intense bout of pain.

​Instead of the relief of a normal scratch, the area erupts into a severe, lingering ache that honestly feels like my skin is on fire or deeply bruised. It takes a surprisingly long time for the burning sensation to calm down, even from just a light or normal scratch.

​I know allodynia (pain from things that shouldn't hurt) and hyperalgesia are common with fibro, so I’m guessing it’s tied to that, but the sudden intensity of it always catches me off guard.

​Does anyone else deal with this? If so, have you found anything that helps calm the nerve flare down once you've accidentally triggered it?


r/Fibromyalgia • • 7h ago

Discussion Trying low dose naltrexone

12 Upvotes

I have fibro, me/CFS, hypermobility (not eds), Audhd. The rare moments I'm not in pain, I fall asleep fast like I've been drugged.

Cue in trying low dose naltrexone, 2mg. I see hope. It's my first day. It's helping a bit, like maybe half way. I. Finding myself feeling snuggly, and like I just want to sleep a lot. I don't feel sedated like other meds have done (gabapentin, ugh).

Have others experienced this? I know only time will tell. Curious if the med is making me tired, or I'm just feeling relief and exhausted.

Update: I read about the LDN and see now it takes a while to get going. So I'm likely feeling subtle changes, as I'm incredibly sensitive. This is why I mentioned the Audhd. The tiredness is probably more side effect than result. However, the cold is less prickly.


r/Fibromyalgia • • 4h ago

Rx/Meds Does anybody actually find their meds useful?

5 Upvotes

I'm on...

Amotryptoline

Clonazepam

Citalopram

Lanzoprasol

Carbamazepine

Fenofybrate

Something else for my cholesterol

Manjaro

Metformin

Insulin pens

And a new addition, ketamine.

I've had enough man. I lie here daily on so much medication to be in so much pain, so little desire to carry on. I can barely move, my mind is constantly confused, silence is so loud. I'm a 38 yead old male with a wife and 3 children, have been ill for 6 years now since my body welcomed a disease called sarcoidosis and since then my life has been on a debbie downer.


r/Fibromyalgia • • 1h ago

Question Jobs

• Upvotes

I work in assisted living and I love my job. I have been so torn but my pain has been so bad, I just started taking meds (pregabalin) and my doc wants me to take Cymbalta but we a waiting for my psychologist to approve that because I am taking Lexapro.. anyway I have been considering getting a different job because of my pain, I love my job so much, it makes so so sad it’s making my job so hard to do. But what are jobs to work that I could make enough money to live?


r/Fibromyalgia • • 10h ago

Question New Diagnosis w/Allodynia

9 Upvotes

Hello all

56m recently diagnosed with fibromyalgia & allodynia

I’ve had ongoing back issues for the last 30 years and over the last year or so started to feel what amounts to a sunburn on parts my body. I got sunburned a ton when I was a kid, so this is the closest thing I know which can relate it too

I can tolerate shoes, but socks, pants, & long sleeve shirts drive me crazy. Of course now I’m being told I need to return to the office for work (I’m a federal civil servant). I can wait for the Colorado winter and trying to wear shorts and a loose t shirt everyday.

All this to say: I’m diagnosed, but still relatively new to this world. Does anyone else suffer with allodynia and have the constant “sunburn” feeling? Has there been anything you’ve tried that has dulled the sensation to where it’s tolerable?

Thanks for any insight you are able to share.


r/Fibromyalgia • • 8h ago

Discussion Looking for some friends

5 Upvotes

I've been going through hell lately and tbh have very little in the way of friends. i do some amount of YouTube sometimes. Play some games. Generally exist sometimes live in new Zealand. Sadly my city has no really fibromyalgia community.


r/Fibromyalgia • • 7h ago

Discussion Random pains and weight loss when stressed

4 Upvotes

Does anyone else experience random pains when you're stressed? for the last couple weeks I've had a bunch of random pains. multiple places in my face, also pain in my neck, and in my back too. I have no idea why. I've also had a bit of virus thing in my throat but not enough to get sick. I've been dealing with a lot of stress lately and idk if that maybe triggered my fibro? also I've lost like 3 kg in the last month for no reason. idk if that's related


r/Fibromyalgia • • 23h ago

Question Unbearable itching?

63 Upvotes

Anyone else suffering with this? I have not been able to sleep much as I just cannot stop itching everywhere. It's never normally this bad, I've changed nothing. My nose and face itches, my torso itches, my head itches, my arms and legs itch, I just can't get away. I've taken allergy tablets in the vague hope it'll help, I've applied moisturizer, I've used cold compresses, but I'm just stuck in itchy hell

Anyone else suffering from this?? I feel like I'm going insane!


r/Fibromyalgia • • 7h ago

Question Moving Advice & Tips

3 Upvotes

Hello! I will be moving in 3 weeks, and I have started packing today. I have moved countless times, but the last move was the 1st with my fibromyalgia and chronic illness flare ups.

The last move was so bad I ended up splitting and was soon diagnosed with dissociative identity disorder. The pain, exhaustion, and stress on my body was too much. I have no memory of packing my last apartment so I don’t know what I did wrong. That’s why I wanted to get some advice from y’all!

I live in a 1 bedroom fully furnished apartment, with my emotional support dog, and will be hiring movers to move everything. I am moving down the street so it won’t be as long of a day.


r/Fibromyalgia • • 13h ago

Rant i just can't take this

9 Upvotes

i'm really starting to worry i'm not strong enough


r/Fibromyalgia • • 13h ago

Funny Had to shower after getting massage with tiger balm because it burned

8 Upvotes

I have a funny (now its funny) story, a year ago my husband wanted to give me a massage, due to musclepain and backpain. He used tiger balm (if you look it up, it's a balm that has a very strong smell). It began to burn so bad that I had to take a shower to get it of, so the burning would stop. First it started itching, then the burn. Now we can laugh about it, but then I was really crying. Now we also know, I need softer balms for my skin.

Just thought to share this with you guys.


r/Fibromyalgia • • 9h ago

Frustrated Vibrating Legs

4 Upvotes

I was diagnosed with fibromyalgia back in the spring. Recently my legs have started vibrating badly frequently and it’s making my muscles ache so much. They hurt all the time and it’s making it so difficult to walk. Any suggestions on what to do to help my legs or help my mobility would be appreciated.


r/Fibromyalgia • • 14h ago

Question What constitutes "chronic widespread pain" in the context of a Fibromyalgia diagnosis?

8 Upvotes

I'm finding it hard to get a clear answer on this from official diagnostic criteria (I'm in the UK). I only have pain in my hands and feet and when I query rheumatologists on this, they just sort of shrug and don't answer the question.

If I do the Finkelstein test, it triggers the pain in my wrists/thumb very badly, so I suspect it's tendon related. Occasionally it hurts by itself, but it's mostly position dependent or through overuse (like crochet, cleaning, playing musical instruments etc). It's annoying because it stops me from doing almost all my hobbies, but doesn't give me much problem at rest. The ankle pain is the same. It is triggered by turning around at certain angles and feels almost identical to the wrist/thumb pain.

The other pain I experience is through Raynauds, Erythromelalgia and the skin next to my nails is red & inflamed most of the time. I get what we think are chilblains on my toes, which are painful, but not itchy (my GP and rheumatologist haven't seen it in person and going off photos). When I've had chilblains on my fingers in the past, they were painful and intensely itchy.

As for the soles of my feet, I don't really know what's going on. It was like I lost the fatty padding underfoot overnight about four years ago, the same time as everything kicked off, aside from the Raynaud's (that began 10 years previous to all of this). The skin on the soles of my feet thickens very quickly and I have to file them several times a week otherwise it becomes painful. I do have a type of linear Scleroderma called En Coup De Sabre on my face and scalp, which can get slightly painful and intensely itchy at times, but I'm more concerned with the permanent hair loss it's causing at the moment.

I do currently have a diagnosis of Undifferentiated Connective Tissue Disease, based on symptoms and blood test results, but I requested copies of my test results and could see notes from my rheumatologist to other consultants about symptoms being due to Fibromyalgia and not an underlying connective tissue disease. I have two appointments a couple of weeks apart, when usually it's once every 6-9 months, which is making me suspicious that they're planning to discharge me. My husband is very concerned about my symptoms collectively (I'll spare you the details) and wants me to see a specialist privately, but I'm worried I'll make a fool of myself/waste money if this rheumatologist is right. And I also don't want to have a full-blown row with my current rheumatologist if I can help it!


r/Fibromyalgia • • 10h ago

Question Anyone know a good pain specialist in Chicago?

4 Upvotes

My wife's reuhm would like her to try LDN in place of pregablin which she is currently on. However, he wants her to see A pain specialist to do this and he won't prescribe it himself. He did not have a doctor to recommend and she does not want to take steroids or opiates before trying LDN. Does anyone know a good pain specialist they could recommend? Our insurance is United Healthcare.

Side note: we do know agelessRX is an option, but she really prefers having an person doctor she can have established continuous access to.


r/Fibromyalgia • • 15h ago

Question What time of day do you feel lighter? Which is as if fibromyalgia wasn't there?

11 Upvotes

For example, I feel fibromyalgia practically in a 24 / 7 regime. But, on very specific days (it's something totally random), I realise that, from 3pm, I can get out of bed and do more things, which lasts until 6pm at most, when the intensity of fibromyalgia resumes with all its violence

And you friends?


r/Fibromyalgia • • 10h ago

Question Are migraines yet another symptom of fibromyalgia, or are they something else?

3 Upvotes

Recently I've been suffering from migraines: I get them every day and they last all day long, plus the pain flare ups a few times during the day (10/20 minutes) where I need absolute darkness to endure the pain.

Is this yet another fibromyalgia symptom or something else?

(Other than fibromyalgia, I also have arthritis, thyroid issues, IBS and gallbladder issues... Not sure if that's relevant)


r/Fibromyalgia • • 23h ago

Question Productive hours?

27 Upvotes

How many “good”, productive hours do you have each day? I can only be up and about for around 8 hours before I am tired, achy, can’t think, and am literally dragging my feet through the house to my bed.


r/Fibromyalgia • • 12h ago

Frustrated Hallucinations other side effects, deciding to get off of it and super worried.

Thumbnail
2 Upvotes

r/Fibromyalgia • • 8h ago

Question Anyone else struggle with multiple pressure-sensitive areas? What helps you?

1 Upvotes

As the title says, this is a struggle for me, which I think is pretty common for a lot of fibro folks? (eg tender point diagnostic criteria).

For me, unfortunately, my most affected tender areas are those which need to be weight-bearing to function in daily life. The balls of my feet are very sensitive to pressure, which means that walking even 1/2 mile or standing more than 15 mins aggravates them (though to be fair, I also have bunions and arthritis in my big toes). My sitting bones are very sensitive to pressure, which means that sitting for extended periods aggravates (I have a cushion that helps moderately and sometimes I ice). The outside of my hips (trochanter area?) are very sensitive to pressure, which means that side sleeping aggravates them (but side is the only way I can sleep so I have to use lidocaine nightly). My SI joints are also sensitive to pressure sometimes, so lying on my back while resting can be aggravating. Basically, there is no position that’s comfortable for me to rest, and weight-bearing movement is also increasingly painful the longer I am up. I’ve even had MRIs done but have been told there isn’t physical evidence of bursitis. /sigh

Anyway, I am sorry for the rant. I just needed to vent a bit and wanted to ask if anyone else struggles with this too and/or has any advice.

Thank you!


r/Fibromyalgia • • 18h ago

Frustrated I don't know what to do

4 Upvotes

Sorry, this is a long one. And if it does not follow the guidelines let me know.

TL;DR: I grew up in a home where physical abuse, yelling, and threats were constant. My dad beat me for minor things, punished me harshly for school or behavior, and later switched to intimidation and anger. My mom didn’t protect me and sometimes hurt me too. I was the main target. Now my dad is forcing me into college and scholarships, calling me lazy and threatening me even though I’m dealing with a chronic illness, worsening vision, and heart issues that my parents refuse to acknowledge or treat. They deny my disability and shame me for needing mobility aids. I feel unsafe, unheard, unsupported, and stuck with no resources or escape options.

Full story:

I’ve basically been abused my whole life, and for a long time I didn’t acknowledge it because getting “whoopins” was normalized in Black culture. I was spanked regularly until I was about 13, and the only reason my parents stopped was because they didn’t want to be labeled abusive. If they could have kept hitting us into adulthood, they would have.

There were many times when the punishments weren’t justified. Once, when I was in gymnastics, I practiced on the furniture at home. My sister told my brother, and he threatened to tell my parents unless I told them myself. When I did, my dad beat me for about twenty minutes. Later I found out the furniture was an heirloom from his father, and he was beating me because he didn’t want it broken.

Another time, I went inside a neighbor’s house for about ten minutes to see their jellyfish. When my dad saw me come out, he got furious. Even though I apologized, he dragged me upstairs and whipped me with a belt. My Mom  thought I had broken my arm because of how badly I was crying, but it was just because I went into someone’s house without asking.

I also got whoopins for bad test scores, for “behavior issues,” and for things that weren’t even wrong. I wasn’t a bad kid — I was misunderstood. But there was no other form of punishment besides hitting.

When my dad finally stopped physically hurting us, he became an angry man in other ways. He yelled, slammed things, threw objects, and constantly threatened to beat us up. As he gained more power at work, he stopped physically hurting us because he didn’t want to risk losing his job, but the threats never stopped. My mom didn’t protect us either — she stood by and let things happen, and sometimes she put her hands on me too. I was the one who got hit, threatened, and disrespected the most.

My parents always ask why I don’t want to hang out with them or go on trips, but it’s because I’ve spent my whole life walking on eggshells. I get threatened every day. I can’t show emotions or show that I’m in pain because it’s “too much” for them to handle.

Yesterday was another example. My dad has been obsessed with forcing me to go to college. I told him I didn’t want to, but he said I had no choice. I applied to community college because I knew I could maybe afford it with a part‑time job, and I got accepted. So I didn’t see the point in applying anywhere else. But during free application week, he demanded I apply to more schools. I only applied to one because I already knew where I was going.

For scholarships, I’ve been trying. I’ve applied to about 10–15 total, and only three this week because those were the only ones I was eligible for. My school gave us a list, and I used every resource I had. But my dad doesn’t see effort — he only sees numbers. He threatened to beat me up again and said I needed to find a job and pay rent.

I keep telling him I have a chronic illness and can’t work full‑time. My vision is getting worse, my heart issues are being ignored, and my parents refuse to take me to a doctor. He keeps saying I’m “lazy” and “disobedient,” even though I did exactly what he asked — he just never gave clear instructions. He wants things done his way but doesn’t explain what that is.

He also refuses to acknowledge that I’m disabled. He keeps saying I’m not, even though my chronic illness affects my mobility and daily life. I use a cane. I struggle physically. That is disability. But he’s embarrassed by it. He doesn’t want to accept that what I’m going through is long‑term, and that I won’t be able to work the way he wants.

I’m frustrated because my life is constantly being threatened, and I’m always protecting other people’s feelings instead of my own safety. No one listens to me. No one tries to understand. I don’t have a support system — everyone I know is a minor, and my family lives far away. I don’t have a license, a job, or money. I feel stuck, unheard, and alone.


r/Fibromyalgia • • 1d ago

Discussion I was diagnosed finally two days ago I’ve had pain since I was 5 calling it growing pains

43 Upvotes

I’ve also been looking at random people around me lately just going about their business and I wonder how on earth they live day to day and a whole 0-90yr lifetime without feeling any pain? Do you do this? I asked a friend who had never had pain, have you ever had what’s called ‘growing pains’ when they were younger and they said no.


r/Fibromyalgia • • 1d ago

Self-help Please help.

18 Upvotes

My boyfriend got a cold over the weekend and I woke up with it yesterday, im doing so horrible. I can’t move, im so cold, everything hurts. I feel like I need to go to the hospital but I know they can’t actually do anything, but oh my god im in so much pain, I feel so sick.