To make a very long story short, today I was told by my new sleep care provider (my previous dr quit) that XYWAV could kill me, maim me, and is not recommended to treat my condition (it is literally the only FDA approved medication to treat my condition. All other meds are off label treatments. And with my career, I have more knowledge than the average joe about pharmaceuticals) and my only options for the rest of my life are stimulant medications.
I am so sick of being on stimulants. It’s been 13 years of them and I am so over it. I know XYWAV has a “find a doctor” option on their website but it is currently not working. Has anyone in the DSM area seen a sleep dr they like, and is willing to discuss my options outside of freaking amph salts, moda, armo etc. I don’t want them if there are other options
I have been through the wringer with my current sleep provider and today was just… the last straw for me. Plz help