r/ProstateCancer • • 4h ago

Other Played with My Girlfriend

7 Upvotes

For starters, it was the first time since my prostectomy three weeks ago that I got to lay with her. I was in heaven. I obviously did some things for her and she was excited and she was ready for penetration if I could do it.

I could not. Nothing. Not concerned because it’s only been three weeks, but it still sucks.

Sort of gave up and we decided that that’s all part of the process just to play and see what happens without any stress. We will keep playing. I am not sure at what interval but man it felt good to try and make out.

The thing that surprise me was pelvic pain 15 minutes later. It’s almost like I’ve got blue balls. I think my body wanted her so badly. I feel all these cramps. I also had taken 10 mg of generic Cialis as instructed every morning. (Got 90 days worth prescribed by my doctor to take that dose every morning). Some of the aches and pains are coming from testicles and some of them are coming from just my pelvis.

Just thought I’d share. Any experience comments are welcome.


r/ProstateCancer • • 3h ago

Question Quick question for the old guard...

3 Upvotes

Ok, diagnosed 4x4 Gleason 8 back in 2014, just turned 50. Opted for hormone/brachys with 25 radiation treatments. Skated surgery & radiation with the only issue being radiation fatigue. Psa was creeping up slowly so had a psma/pet scan a month or so after the FDA approved the procedure. The scan showed 2 spots...one in the prostate area & one in the left pelvic. They didn't show up on a regular CT scan....

Fast forward to the present... my team scheduled a psma/pet scan as a "check in" for Monday. My question, after my psa test yesterday, how likely am I to start treatment now that my psa is at 4.52?


r/ProstateCancer • • 10h ago

Concerned Loved One Unable to pee 6wk after TURP

4 Upvotes

Hi everyone! Hoping someone can share any thoughts/ experience similar to my dads- unable to pee 6 weeks after TURP.

Background he’s 63yo male. Always had BPH that caused difficulty but he could just about deal with medication.

PSA
2021 1.2 - 2022 1.6 - 2024 1.5 - 2025 2.1

In July symptoms got significantly worse and it stopped him from sleeping. He finally had TURP early September.

Recovery was harder than he expected, ended up with infection and on antibiotics.

Histology on the removed TURP tissue came back <5% Gleason 6 cells. He has MRI scheduled for November and biopsy in December.

He took it easy and started to feel more like himself this week and back to normal life, peeing well at last (about 6 weeks post op).

However on Thursday night he couldn’t pee AT ALL. Got sensation like he wanted to go but it nothing came out. He said was v uncomfortable.

He went to urology and 340ml in his bladder.

They decided to insert catheter to drain and failed twice because it was so tight like there was a blockage. They managed to get it in on third attempt but said it’s quite unusual for it to be that difficult to insert after TURP.

He has that in for a week and should have supervised catheter removal next week.

There was no like, investigation of what could have caused it - I Just wondered if anyone else has had this situation where there was sudden blockage this far into recovery after TURP?

What could be causing it? What should next steps be? He’d had some alcohol Thursday night but that seems unlikely to cause full on blockage??


r/ProstateCancer • • 15h ago

Question What is the next option? ADT/ Radiation/S rt/Chemo with Docetaxel/ Lu177 done

3 Upvotes

My dad was diagnosed in 2020 with Gleason Score 4+4, Stage 4a, 30% involvement.It had spread to lymph nodes and PSA was 98 and later 380.

As it had spread to lymph nodes, doctor ruled out the surgery.

We started with Radiation -28 fractions while on Zolodex (ADT) every 12 weeks

Stabilized and PSA was negligible till about 2022.

We then added Apalatuamide for another year it stabilized

Then in late 2024 PSA was rising again. After investigation we found out it spread to Lungs into right hilar region.

We conducted SBRT and added another tablet Enzalutamide.

Then after a year or so in Feb we noticed recurrence. We started on chemo with Docetaxel 6 rounds but was ineffective.

We then started with Lutetium 177 PSMA one round. There was some side effects around lungs and he had breathing problems due to which the treatment has been discontinued. Doctors are treating pumonary problems as disease progression than simple pneumatic side effects of Lu177 or another infection.

Now doc has started him on Honvan (an outdated hormonal drug that seems to be upping Estrogen). I am not so sure of this line of treatment correct.

Should we start him on Chemo with Cabazitaxel? Any one here had better results with Caba after Docetaxel failed?

Tested negative for the common immunotherapy variants

Any other option (Actinium will have similar issues as Lu177), any clinical trials or hospitals i should look into? We are in India but have US Visa but is also kinda broke but can still afford to travel if say the trial itself is paid for or is cheap.


r/ProstateCancer • • 20h ago

Question 42M, PSA 3.2, Likert 3 MRI, PSA density 0.11 — biopsy or monitoring?

5 Upvotes

Title: 42M, PSA 3.2, Likert 3 MRI, PSA density 0.11 — biopsy or monitoring?

Hi everyone,

I’m 42 and recently had a prostate MRI following a mildly elevated PSA. I received my results today and am trying to decide whether to proceed with a biopsy or monitor my PSA.

My results:

Age: 42
PSA: 2.55 in March 2023, approximately 3.2 in July 2026 and 3.1–3.2 in September 2026
Prostate volume: 29cc
PSA density: 0.11
MRI: Likert 3/5 (equivocal)
Findings: Diffuse bilateral peripheral-zone changes, with inflammation suggested as a possible explanation
DRE: Normal on two occasions
Family history: None known
Other MRI findings: No reported extracapsular extension, suspicious lymph nodes or bone lesions
I’ve experienced occasional urinary hesitancy and some intermittent discomfort after ejaculation, which makes me wonder whether chronic prostatitis could be contributing.

The consultant has reviewed my case and considers either a biopsy or repeating my PSA in three months reasonable. I’ve been given until Wednesday to decide.

I’m particularly interested in hearing from anyone who had Likert 3 / PI-RADS 3 findings with a PSA density around 0.10–0.12, especially where the MRI suggested diffuse inflammation rather than a clearly defined lesion.

Did you choose biopsy or monitoring? What influenced your decision, and what happened subsequently?
I’m not looking for a diagnosis, just hoping to hear experiences from people who’ve been in a similar position.

Thanks!


r/ProstateCancer • • 21h ago

Question Radiation and Lupron

3 Upvotes

Hey all, I’m 57 and I had a radical prostatectomy in November of 2021. Nothing has worked in terms of getting an erection except for Trimix and that was actually painful because I fear I have Peyronies. My wife has been very understanding and that part of our relationship has had to be cut back severely. Fast forward to May of this year and my PSA rose to a level where radiation was advised. I’ll be doing my final of thirty on 10/19. I’m not going to miss going to the hospital every weekday morning. 😆 I got the Lupron injection the day before I started treatment and those damn hot flashes started after about 3 weeks. Anyway my question is if anyone has had a similar history as I have is there any hope for “re-booting” the erections when I start to produce testosterone again. I’m guessing it’s a no as that’s what the Doctors have pretty much said. Thanks for taking your time to read this.


r/ProstateCancer • • 3h ago

Surgery Brachytherapy two days ago. Please tell me you've had it and it gets better.

5 Upvotes

Diagnosed in February. Gleason 9. Eligard and Zytiga, plan is two years of hormone suppression. Completed my 5 weeks of daily beam therapy, and had brachytherapy Thursday. Catheter removed yesterday.

I'm a happy go lucky guy in general, and I've kept up a good sense of humor so far, but I'm at an all time low.

The urgency is SO bad. I can barely make it to the bathroom without pissing myself, then it's like two ounces. Wait 15-30 minutes and repeat. I'm sporting Depends and was dismayed to find they don't do fun characters like Pull Ups do. I was hoping for Deadpool red and black or something. But that's not the big thing.

I had sex just before my brachytherapy. Not mind shattering or anything but definitely good sex with my wife. I'm bogged down by the feeling that the brachytherapy puts an end to that. Frankly, I'm scared.

So just tell me you've been there and it worked out. Tell me the urgency and incontinence eases and you have a somewhat regular sex life. I can accept it gets worse before it gets worse, as long as at some point it gets better.

Thanks.


r/ProstateCancer • • 23h ago

Update Termine 28/28 VMAT

5 Upvotes

Hi, colegas, 28/28 VMAT, termine con sonda, anemia y neutropenia, ahora a recuperarse, fuerza y voluntad