This seems like it could be a promising treatment for Lyme.

Newly diagnosed with late stage chronic Lyme and co infections— for context I went 28 years undiagnosed with symptoms coming and going not knowing it was this. I’ve always gotten flu and covid vaccines, but my naturopath I’m working with cautioned against the covid vaccine due to some new research that was found about the spike proteins? All of this I gathered her warning was that it causes reactivation in some people with chronic Lyme. I tried to recall if I ever had symptoms flare or worsen after each shot but I went so long writing these symptoms off that I couldn’t tell you. Has anyone experienced a flare after getting the covid vaccine?

My core issue is: I have a toddler, and I’d like to stay vaccinated to prevent getting badly ill as much as possible. I’m more concerned with his health than my own reaction to a vaccine, but I am also newly and slowly treated my Lyme and co infections for the first time. Hope this makes sense.

Edit to add: I am not an anti-vaxxer and never will be. My toddler is still too young I think for the Covid vaccine. But he has the flu shot already.

Anyone use a PEMF mat? Looking into it for sleep + anxiety + inflammation support. But the mats are expensive. Would love to know if anyone uses one and experiences any relief.

Those who have completed their BVT treatment tell me that after a year of stinging, the venom brings up old layers of Lyme disease symptoms that have to be dealt with. I can tell that this week, the neuro Lyme symptoms are coming up full force. I am still having a load of relief after each time I sting, and look forward to sting days. However, the nerve damage pain in my legs was off the chart this week.

I am so grateful that I am able to use my legs again, after not being able to walk and in a wheelchair just 3 years ago. The numbness was still present (with horrible stabbing nerve pain and hot feet for the past five years) but the tingling and attempts for the nerves to heal has been really obvious this week. Even as I write this, my toes and feet are tingling, a warm, nice sensation with occasional knife-like jabs.

My legs felt extra heavy today, similar to what I remember years ago, around 1977, just a few years after a tick embedded in my spine for five days on a camping trip in Colorado. I was always an active kid; loved running and playing. I switched schools and the teacher lined us up for relays. I was excited, and couldn't wait for my turn to grab the baton and blow away the other teams. I reached out my arm and grabbed it from my teammate. Something in me felt off, like my legs had sandbags attached to them. I tried to move them, tried to tell my brain to move them like usual, and they would not go. Helplessly, I watched the other teams laughing hysterically at me and my team yelling and screaming for me to move. The name calling started, the embarrassment was something I would not live down. After that incident, where I ended up almost crawling with the baton to the next person 25 yards away, team captains fought to NOT have me on their teams. The teacher angrily scolded me for ruining my team's chance to win, and "on purpose". Crying, I curled up in a ball in the corner of the playground and cried, hoping that I would disappear.

That feeling today caused me to have quite a few flashbacks to the past, when I wanted to run and play, swim and surf so badly and my legs would not cooperate. I was only recently diagnosed with chronic Lyme in 2024, and now all those times make a lot more sense.

The rage and mood swings have reappeared. Today, I burst out in tears for no reason, then had rage (that I have not felt for decades) which surfaced and it took all the prayer and slow breathing I could muster to bring myself to not let that torrent out of my mouth.

I remember in the early 1990's, I had a few friends over to my house, and we were all having a fun time playing card games. Suddenly, the rage built up in me after catching someone cheating. I regret to share that all three friends left my house quickly, soon after the rage came out of my mouth. I lost their trust that day; and there was talk about me having a psychotic episode (which is ironic, since I was working on my second college degree to become a child. psychologist). I apologized to them, but had no explanation for why I could not control the anger. I prayed it would not happen again.

Neuro Lyme is one of the scariest symptoms to have resurface, but it is necessary to wipe out that nasty bacteria, parasites, and biofilm that manifest in a form of mind control. I pray that this part of my journey does not last much longer, and that healing continues.

If you haven't researched Bee Venom Therapy, please do so. I am so glad I decided to try it. It is packed with over 14 strong peptides and amino acids, the strongest being Mellittin, which wipes out Lyme and coinfections on contact.

My wife has been attempting a Lyme disease cure for the past 3 weeks. She started taking Artemesia and found that this gave her constant diarrhea. She then switched to Cryptolepis (just one drop with food) and the diarrhea continued. Is this a common symptom? Will this side effect eventually end?

Summary: Ranting about my results and fears.

I see my Dr. on Tuesday to discuss everything, but in the meantime, I’ve been stewing over my IGENEX and TLAB results.

So… Babesia odocoilei.😭 If anyone has this and has any tips, please share! As glad as I am to finally get an actual positive for Babesia and know the specific species, you won’t catch me celebrating! It seems like everything I read about treating it sounds horrible, which is… encouraging… (heavy sarcasm!)

Finally getting a positive for Lyme is pretty humorous to me, considering I’ve known I’ve had it for about 8 years now, but this is the first time I’ve gotten a positive result!!Validating nonetheless.

As for Anaplasmosis, I initially thought I read that it was positive, but now I’m not sure if I interpreted that correctly. At this point, why not add another coinfection to the collection? (More sarcasm.🙄🙄) Looks like Bart is still playing hide and seek, so maybe another time, you evil sneaky bastard.

I’m scared of so many things right now: treatment, the cost of treatment, and what my new baseline might look like during. If I didn’t have MCAS complicating things, I’d throw myself into treatment! I know I need treatment, and even though my current baseline is still disabling, it’s something, and I’m scared of losing that.

These infections have already taken so much from me and completely turned my life upside down. I’m scared of going through another round of hell. Sometimes I just wish I only had Lyme, if someone can even wish for such a thing…

Anyway, I’d love to hear from anyone who has experience with Babesia odocoilei, or if there’s anything else you’d like to share!

Hey all,

I'm just wondering if Ivermectin has a role in Lyme disease treatment?

I've had Lyme for 8 years, undiagnosed. I took 4 months of Doxy last year which helped eliminate my pain for a few months. Symptoms are now returning and I'm looking at treatment options once more.

Honestly, I'll try anything that won't kill me (because they Lyme damn near killed me).

Thanks.

Hi, guys )) Hope you're having a better day today.

I had cramps before, it's always related to herx, and they often happen at night when I'm in a horizontal position. No other way but to get up several times at night and start walking.

Now I'm on Cryptolepis alone because I tried to add it several times to my regime, and it always was too much. At a certain, still low, dose bad cramps started again. I take good vitamins and multiminerals, I have Potassium Chloride and electrolytes. Don't really know what else I can do.

Maybe, take higher dose of Potassium? If so, how much? I took electrolytes in the past with no results. Cramps only passed when herx passed. But with pain and broken sleep...

Any suggestion is welcome!

I've been researching this drug and it appears to have a lot of beneficial effects for us

Initially I wanted it for my bartonella leg pain, it's used to improve microcirculation but then I discovered it has a lot cytokine modulating activity - reduces a lot of the same ones buhner herbs do

I'll post AI Google summary (sorry I know)

Cheap to buy from Indian generics too, I'm thinking about experimenting with it??

As we all know, bartonella is the most difficult thing to get rid of. But what if you can’t take rifampin? Me and many others simply can’t tolerate this medication.

What can you do this in situation? As I understand there really aren’t any treatments as effective as rifampin.

Hello, my daughter is 2.5 and we found a deer tick in her scalp today. The body was not engorged but the head did not come out. We gave her some homeopathic and herbs but now she is asleep and the head is still in her poor head. We will go to urgent care tomorrow but wondering what folks here think as I have heard mixed things about the risk of leaving the head in. I have had 2 tick bites in my life and while I haven’t had serious problems from Lyme (took doxy both times) I have had a lot of serious health issues that I believe are related to Lyme so I am very worried about her long term health!!!

Just reposting what someone posted in a different group.
Also if you do decide to supplement b 6 be aware of b6 toxicity.

Hi,

I had Japanese knotweed whole plant in raw herb tabelts from onlyx.com. But every time I try to take it, it tends to cause me diarhea, like not microbiome disruption, but like rapid bowel movement. Any idea if it gets better with time? Also, do you know any good brands from Poland, Slovakia, Czechia, Germany where one can buy quality herbs?

Thanks

UPDATE: Is resveratrol alone also active against lyme and bartonella?

This was one of my very first symptoms, years ago. I still occasionally get one or two going to sleep at night, and at a level that can be considered normal, but I am almost guaranteed to get them continuously while trying to nap in the day. Is this normal? I’ve read it can be, since your brain has a harder time shutting off in the daytime as you are generally more stimulated throughout the day.
I just take herbs at this point, and have been for about 1.5 years after treating with abx. Wondering if there are some specific herbs that could help with nervous system regulation that I’m not already taking.

Hi i am pretty sure my bartonella just reactivated for the first time in five years. Has anyone else experienced this and been able to pinpoint what would reactivate it?

I started out just sitting in the sauna for like 20 minutes and calling it a day. Now I’m messing around with different temps, timing, hydration, and all that stuff.

Lately I’ve been thinking about adding red light too. Has anyone actually combined the two for a while? Wondering if it’s worth making part of the routine or if I’m just overcomplicating it.

I want to go to a medical practice that can't prescribe outside of their state, and I don't currently live there. They recommend having a second doctor locally who is willing to write prescriptions for whatever they recommend. I was referred there by my current doctor because they don't know what to do with me anymore, at least not for a specific problem that I'm currently having that's preventing me from being able to treat. My current doctor is fairly conservative, and I don't think she will go for this. I don't think my chances of finding a new doctor willing to do this is high (why would they be willing to for a new patient they don't even know?).

Does anyone know of any tricks or loopholes to safely get around this or to get a doctor willing to do this? Or, is my only option to fly back and forth every time I need to fill or refill an Rx? Some of it I could maybe get from online pharmacies that don't require an Rx, but I don't think that will be the case for everything.

I got what appears to be a bug bite on my hip.

Afterwards, these red streaks on my shoulder and by my ribs appeared.

Could it be Lyme/bartonella/babesia?

Thanks in advanced.

I did also randomly find a little bug in my bed blanket but didn’t think about ticks in the moment so I killed it.

I can't currently do specialty testing where I am located. (Latin America)

So doing the IGG/IGM tests seems pointless.

Wondering if I have Lyme through my symptoms or just Mold/CIRS?

I wake every morning to a stiff/pain soreness in my hands and somewhat my legs. It's everyday and it allows me to not sleep past the early morning. Curious what thoughts are on causation?