I’m honestly at my wits’ end and hoping someone here has experienced something similar or can offer some advice.😭
I’ve been struggling with a persistent vaginal odour since I was around 18. I first noticed something was wrong on a particularly hot, sweaty day when other people could smell a very strong fishy odour, but I couldn’t actually smell it myself.
Around that time, I found out my first boyfriend had given me chlamydia. When I was tested, I also discovered I had bacterial vaginosis (BV). I received treatment for both infections, and things seemed to improve temporarily, but the smell eventually returned.
I’ve always wondered whether having both infections affected my vaginal microbiome, as I’ve struggled with this ever since.
Fast-forward five years, and I’m now 23 and STILL dealing with the same problem.
I’ve had countless GP appointments, examinations and vaginal swabs. I’ve repeatedly tested negative for BV, even when I’ve had swabs taken while experiencing the strong fishy odour.
I’ve also been tested for:
- Chlamydia and gonorrhoea
- Trichomoniasis
- Mycoplasma and Ureaplasma
- Thrush
- Other common vaginal infections
I’ve had my cervix examined, and everything looked normal.
The ONLY thing that’s recently come back positive is Group B Streptococcus (Strep B). I’ve been prescribed amoxicillin but haven’t started taking it yet, so I’m hoping this might finally make a difference.
My symptoms:
- Strong vaginal odour, often described by others as fishy.
- Excessive discharge, sometimes enough to make my underwear feel soaking wet.
- The more discharge I experience, the stronger the smell becomes.
- Occasional irritation and discomfort.
- Sometimes I can smell myself, but often I can’t, which makes me incredibly anxious.
- Symptoms fluctuate in severity but never seem to disappear permanently.
What I’ve tried:
I genuinely do everything I can to maintain good hygiene.
I wash externally with a gentle fragrance-free cleanser, wear 100% cotton underwear, avoid thongs, wear loose clothing, regularly groom my pubic hair, take probiotics, drink plenty of water, use a bidet and always wipe front to back.
I’ve tried changing my underwear, hygiene products and daily routine, but nothing has permanently helped.
I’ve also noticed that my discharge sometimes decreases when I stop drinking coffee. Recently, I switched to green tea and noticed an improvement. I’m considering cutting out caffeine, alcohol and reducing my sugar intake to see whether my diet could be contributing.
I’m not sexually active and haven’t been for over two years.
What frustrates me most is that I’ve been tested while actively experiencing the strong fishy odour, yet everything still comes back negative.
I’m a very hygienic person, and I genuinely don’t know what else I can do. It’s affecting my confidence and everyday life, especially because other people sometimes notice the smell when I can’t.
I’m now wondering whether I could have aerobic vaginitis (AV), a vaginal microbiome imbalance or another condition that isn’t being detected through routine testing.
Has anyone experienced anything similar?
- Persistent fishy vaginal odour despite repeatedly testing negative for BV?
- Group B Strep associated with excessive discharge or unpleasant odour?
- Aerobic vaginitis that went undiagnosed for years?
- Symptoms improving after changing your diet or cutting out caffeine and sugar?
- Any specialist tests or treatments that finally helped after years of negative results?
I’m planning to ask for a referral to a specialist because I genuinely don’t know what else to do.
I’m only 23, and the thought of dealing with this for another five years is exhausting.
If anyone has experienced something similar and eventually found an explanation or solution, I’d really appreciate hearing your experience. ❤️