I had this ice cream thing for dessert and now I feel sicker than a dog. It’s certified but the website also says may contain wheat, so I’m confused. This brand or product give anyone else issues? I’m trying to figure out what else could have made me sick.

Edit: Thank you so much to everyone who commented! As many of you suggested, I believe it is likely the other ingredients as these things are highly processed. I have fibromyalgia as well and will occasionally react to highly processed foods poorly, so that’s my guess. Thank you so much to everyone again!

Hola everyone!

I got the celiac diagnosis 2008, probably been living with it undiagnosed for a couple years (at least 4).

I had severe problems that lead to this diagnosis (anaemia, fatigue, pneumonia, weak Immunsystem in general, etc etc). After going strictly gf for a while, most of this symptoms significantly improved. I never went back to 100% - but I'd say at least to 70-75%, which was like a gift to me.

Back then, I wasn't that sensitive to Gluten, for instance I could just wash the dishes and cutlery at someone else's (gluten contaminated) place or could eat things with <20ppm gluten and would be fine.

Over the years, that changed significantly.

Nowadays I can't cook at someone's places safely (new sponge, precleaning, cleaning stuff etc), I can't consume some (many) products that state <20ppm. I can't eat gf certified oats and many more things.

It's not like get the same reaction as if I'd accidentally ingest a noodle or sth like that, but i get a very specific gut pain zu the left of the belly button and my gut just stays inflamed for a whole (bloating, mushy stools etc.). Last duodenoscopy showed lymphozytes being active in the mucosa (sign of inflammatory action), while the microvilli showed no degradation (2008 I had Marsh 3b).

My whole household is strictly gf, guests aren't allowed to bring any gluten.

My tolerance even to minimal cross contamination ( probably<5ppm) in production is basically 0.

I thrive on keto diets, but since I don't like meat, or at least can't only eat meat only over longer periods without disgust (not to speak of animal abuse), that's not really an option either.

Anyone has similar experiences or advice?

Thanks in advance

I only had 4 pieces and then it hit my tummy like a hammer :(

I had no idea what happened and went to check the ingredients and booooiiiiing, it has wheat flour and soy sauce.

My symptoms are bloating and really bad nausea. Ugh, this sucks! I feel so stupid. But lesson learned!

I ordered a grilled chicken sandwich with a gluten free bun and some waffle fries. After taking a small bite of my sandwich i noticed the supposed gluten free bun felt a lot like real bread and tasted so. I immediately realized they gave me the sandwich with the default bun and i then checked the receipt to confirm it. After that i did not finish the sandwich and gave it to my family member. Apparently the gluten free bun is supposed to come in a separate package and i was meant to then assemble the gluten free grilled chicken sandwich but i was given the sandwich pre assembled. I know i was stupid for not immediately figuring out the sandwich had a wheat containing bun. Now im probably going to be sick for a while.

Hello!
I did a Glutendetect test and I don’t understand if it is positive for gluten cross contamination.
The guide tells that if it is red it is positive, if it is grey it is negative. This seems to be a bit red but I’m not sure.

I have an appointment with a dermatologist on Monday and I want to know if that is a usual symptom. Only my left arm itches. I mean, it’s more than an itch, it’s like someone clawing their way up through my skin. Then I itch and bruises appear. The bruises last for days. I’m not even 100% sure it’s from gluten as I am very careful.

Sometimes I feel like I’m overly cautious, but the thought of getting sick stresses me out.

do you think there’s actually a risk of cross contact?

Does anyone know if the black cat Frappuccino that’s releasing on the 22nd contain gluten ingredients? I can’t find any information online.

Ive started to think about college, and now realize that i have absolutely no idea what the hell im going to eat when i live in the dorms. Any great suggestions?

Despite having some health setbacks including a hospitalization, I'm so proud of myself. 🥺

It took 5 years of figuring things out, but I have well-managed celiac disease. So much of my time and control had been taken from me when I was in the trenches of healing from the damage of celiac, that I decided this year I really wanted to challenge myself. I guess I wanted to prove that I'm stronger than I think I am.

I started running in March and when I was able to complete 5Ks, I really wanted to run for charity. Naturally, I chose one that supported celiac disease.

I really hope we will continue to see advances for a treatment and a cure. The promising studies we've seen lately gives me a lot of, well, hope for the future.

Edit for clarity: I ran 43 miles across a 2 month period (the event was for the fall), averaging 3.13 miles per run. I am not an ultramarathoner.

Hi! I’m in the process of being diagnosed Celiac or severely gluten intolerant (also a Type 1 Diabetic, woo!). Important to note that I am in fact outward facing asymptomatic when I consume gluten (no bloating, no stomach issues, etc.).

I just had my endoscopy on Monday, but am starting the transition to gluten free since I’m grocery shopping.

I’m finding that a lot (not all) of the food I regularly eat are already labeled as GF, but not certified - for example, Bear Naked Cacao & Cashew Butter Crunch (I knowwww there’s big discussion around oats, but unsure how they can label GF if they’re not..?), Pure Protein bars, yogurts, all my single ingredient foods and some mixes, etc.

Do people who are celiac trust just a “gluten free” label that is not certified, or do I truly need to question everything? I feel like if I can’t trust the GF designation I will truly make myself crazy. It’s hard for me to fully understand since I’m asymptomatic. Is it safe to trust the GF labels if they’re not certified? Have people been glutened by foods labeled Gluten Free in a grocery store?

I’m curious how many people have hashimotos or graves and were tested for celiac after receiving that diagnose?

Oie, algum brasileiro conhece algum wrap/tortilha sem gluten que seja bom? eu adoro rap10 e suas variantes, e desde que fui diagnosticada com doença celiaca tenho tentado achar substitutos

já provei o da natural life mas os dois pacotes que comprei vieram em pedaços, agora estou com o da jasmine, mas achei muito duro, fica crocante após aquecer ao invés de maleável. já provei também o pão pita da casa rigani porém nao achei que cumpriu o papel, nao abriu e também despedaçou todo, entao nao sei se dou uma chance para as tortilhas deles.

Não sei se estou usando eles errado, mas tento fazer da forma com que fazia rap10! pfv celiacos brasileiros, eu tô desesperada kkkkkkk

I was panicking yesterday before having to get it this morning and then when I was actually there I started to have a panic attack, but then they knocked me out 😭😭😭 I woke up with zero pain. They took a biopsy for celiac and something else. They said my esophagus was healthy tho so I’m not sure what’s wrong with me. I do have an allergy test on Friday just incase I’m not celiac but allergic.

Hi all! I’m a 25 yo woman who just got diagnosed with celiac via biopsy and blood test about three weeks ago. It was a long journey that started in April after years of on and off stomach issues, but the worst symptom and the thing that pushed me to getting diagnosed is this ANNOYING. SHOOTING. PAIN.

i would say there is a 4 inch band between my bust and stomach that just shoots with pain, randomly, multiple times a day. It feels like a cramp or pinch, and typically lasts a few seconds, but it has consistently been the worst symptom I’ve had. On a GF diet now with a cleaned and full GF kitchen and am trying to be patient but wow it’s really annoying.

It kinda made me wonder what other people think their “worst” symptom? or did you have a symptom that was “weird”? I presented with atypical celiac so it’s had me wondering. Curious to hear, thanks!

also, anyone else get that sporadic shooting pain? Because it’s truly a pain in my behind!

Yes or no..... the local shop changes utensils and gloves but this is from the people they get their product from

"We are very careful with allergens; breaking down, washing, rinsing, and sanitizing the machines after we run any flavor with an allergen. And while we can't guarantee that there is no cross contamination since we don't have dedicated machinery, we work extremely hard to provide quality products.

For gluten allergies specifically, I can say that our base mix is gluten free, thus making all of our products gluten free unless there is an inclusion in the product that contains gluten. For instance, Birthday Cake is gluten free, because there are no cake pieces in it, but Ultimate Oreo is not gluten free because it contains Oreos. 

If you are interested in seeing a current list of all of our gluten-free flavors, click on the "Flavors" tab located at the top of our website, chocolateshoppeicecream.com, and select “Gluten-Free” located under “Super-Premium Ice Cream”!

I am unable to speak for individual shops procedures, as all of our shops are independently owned and operated, so I would recommend asking your local shop about their procedures regarding cross-contamination.

If you have any other questions, please don't hesitate to ask!
"

As the title says.
I wish gluten free bread had the same quality as regular bread.
Sure the taste and texture has improved somewhat over the years.
I found a bread I really like (BFree brand—the size, taste, and texture of the bread is just like the regular bread. But the loaf length is SO tiny). With regular bread, you’re able to make 10 decent sized sandwiches with one loaf. With gluten free bread you’re only able to make 3 maybe 4 sandwiches per loaf. It doesn’t last long either. I find that gluten free bread molds faster than normal bread. And the cost of the bread! Why is it quadruple the price for a tiny loaf of bread?!
A regular loaf of bread is $2 or $3. And a loaf of gluten free bread is close to $7 or $8.
In this economy it’s hard to afford anything, gluten free doesn’t help at all. Especially with celiac, when you don’t have a choice but buy gluten free.
I’ve had celiac for 15 years and i still get frustrated with gluten free bread lol

Hey I’m 18 I was just diagnosed and it’s crazy to me like I have to alter my entire life and everyone is acting like I’m crazy for being upset and they say it’ll be fine and theirs so many options out there but nothing is the same anymore. I used to just walk the aisles and pick whatever food I wanted now I have to scan my app or read the labels and I can’t just go to McDonald’s cause I’m hungry or have a family dinner. I feel so isolated like nobody will ever understand, I’ve never even met someone who knows what celiacs is and I just wish I could feel normal again.