I'm sorry as I don't have a question, I'm just looking to understand what others did to cope.

My daughter is 4.5 years old, and had her celiac diagnosis when she turned 3. We have no other celiac at home, and have adapted fairly quickly our routines.

I do most of the cooking at home, and it is very rare that we have food that contains gluten to avoid mistakes. This is fine, no issue there and is fairly easy to find decent pasta alternatives, or avoid gluten-containing materials.

However, I am still unable to cope with her diagnosis. I have a hard time dealing with this. I used to love going out with her and having an improvised bite at a cafe or restaurant. But this basically disappeared as I'm always anxious of cross-contamination. And sometimes there is simply no alternative.

I live in sweden where luckily most restaurant staff are quite aware of special food requirements and allergens. I often opt for asking for lists of allergens and can see it quite easily, and most restaurants (especially big chains) have good alternatives. But still we avoid eating out as we have seen mistakes happening (we often need to ask AGAIN that the food is gluten free upon getting it, and have seen mistakes happening). This is worse when we travel abroad.

We rarely eat out and I'm quite ok with cooking at home. Also pushes us to be more healthy.

But I'm still having a hard time coping with this.

We (me) used to live going for a slice of cake, would do it once a week on weekends. Gone. We would order a pizza from a random spot. Gone. We would go to museums and order food from the restaurant. Mostly gone or always a stressful situation.

And then I'm particularly mad that there are so few options available, even though Im fully aware now that things are better than s few years ago. There's not that many types of filled pasta available, and the one we can find is awful. Cereal, few options available, almost nothing kid friendly (think of how many boxes with fancy cartoons there are). And even though we are ok with this since it helps avoid sugary cereal, I hate that this is imposed and not our choice.

Sushi? We would go out and get her some version that had cooked egg or vegetarian sushi. Gone, since most sushi vinegar contains gluten. She used to love seeing all those colors in her food!

I know, it's not the end of the world, and I can always learn how to do things at home. But I'm mad that this is the situation we are in.

Plus, how hard is it to find a decent bread recipe that gets you fluffy white bread with few ingredients. I used to bake bread at home, and would do it with just 3 ingredients only. Now? Can't find a decent recipe and bread is never fluffy. Maybe I havent added enough psyllium or whatever, but my god it's not easy.

At school she has her own food and that's great. It has happened on special occasions that all the kids bake a cinnamon roll and she gets bread with sugar and cinnamon..... We asked the teachers to let us know and we drop her with a glutenfree alternative. But these things have happened. What annoys me the most is that she will feel discriminated as she grows up. We try to minimize and not make it a big deal so that she learns it isn't a big deal (and make up for it at home), but inside I'm still mad about the situation and the future. We also make her see that other kids have allergies so these things are usual. But still... Maybe I'm suffering in anticipation....

Sorry, I don't really have a purpose with this. If you have lived with celiac or have raised celiac kids, I appreciate all the words.

Sorry again for the rant. I just want her to be happy and grow up resilient and without feelings of discrimination.

A hard seltzer and a malt beverage are very different things! Putting hard seltzer all over the box in big lettering and then putting malt beverage in much smaller writing on the bottom of the box is ridiculous. Thank god I noticed it in tiny writing on the can before taking a sip. This disease is so frustrating. Companies that label their products like this is dangerous. And I'm mad at myself for not triple checking before buying. We also got the cranberry apple flavor too. Now my husband gets to drink all of them. Be careful everyone when shopping the seltzer and cider section at Aldi. 🙃

ETA: I just looked on Aldi's website. This is the description of it and no ingredients listed.

"Fieldcraft Guava & Pineapple Hard Seltzer combines the tropical flavors of guava and pineapple in a refreshing hard seltzer. With 6% ABV and 17% fruit purée, this drink is perfect for casual get-togethers or relaxing weekends. Enjoy it chilled straight from the can or pour it over ice for a cool treat. Delight in the vibrant, fruity taste of Fieldcraft Guava & Pineapple Hard Seltzer."

Doesn't even mention it has malt at all online!

For context, my daughter and I were both diagnosed with celiac disease in spring of 2025, but this scenario predates that.

My partner will order takeout for himself without saying anything to us. And I don't mean when we aren't expecting him home for dinner. If our errands run late and he's hungry, he will get takeout for himself and not even communicate that to us.

He will be fully aware sometimes that I am cooking dinner and expecting him home, and then tell me he isn't hungry because he got himself takeout. And part of it is definitely that I feel left out and jealous, and that part is my responsbility and just part of this diagnosis. But I think I'm more upset that he doesn't even let us know that he won't be eating with us. I know that I can't enjoy the same foods he can, and he should be able to still enjoy them sometimes.

I just feel like he doesn't consider us and is just doing his own thing regardless of what his family is doing. I can't imagine not at least letting my partner know and still sitting down with them and my child for meals. Am I overreacting or is this in general just inconsiderate behavior when you have a partner/family?

What are your glutening symptoms like?

As the title says, I’m new to my diagnosis (about 10 days) and have been eating gluten free since then, including throwing out certain cooking materials etc.

I’ve been told my doc and have read it might take a while for someone to feel better going GF (especially with someone who has as high of bloodwork as me 9% higher than the norm) but I just need to know if feeling WORSE in a different way could potentially be a glutening thing? And could I have accidentally eaten gluten? Or am I actually sick?

I woke up yesterday with cold like symptoms (aches, stuffy nose, sore throat, aches, sneezing, but no fever) and today it’s a little worse.

My symptoms before were similar to a bad cold/flu symptoms, along with bad indigestion/acid reflux, constipation, and gas for stomach problems, but mostly had the brain fog and fatigue and general sicky feeling.

Could I have glutened myself accidentally? I feel a mostly good in my stomach but just with some nasty farts but read it could be the Schar bagel I ate lol.

What are your symptoms when you accidentally eat gluten?

I am so terrified I’m still eating gluten but don’t know if so may be paranoid about this but just don’t want to prolong my healing journey 😫

Hey everyone,

I got glutened and honestly don't know how to handle it. My reaction to gluten is pretty strong, especially since I'm bedridden with severe ME/CFS (a severe neuroimmune multisystem disease).

After every gluten exposure, my baseline gets worse. I'm already dealing with severe symptoms every single day and getting glutened makes everything so much worse.

Honestly, I don't know how to cope with knowing that I'm going to suffer so much more than usual for the next few weeks/months. I can barely eat because of ME/CFS and after gluten exposure it gets almost impossible.

Is anyone else here dealing with both conditions? Or does anyone have any advice on how to stay sane lol? 🥲

Thank you so much in advance! Stay safe :)

Last year The Guradian reported on the progress of 2025 research that uses synthetic nanoparticles that are designed to retrain the immune system. If successful, it would allow coeliacs to consume gluten without damage.

https://www.theguardian.com/wellness/2025/may/12/autoimmune-disease-inverse-vaccines

Northwest University immunologist Stephen Miller has described the vaccine as “the holy grail” to combating autoimmune diseases such as coeliac. I've read that it could be rolled out within 10 years, but is it too optimistic to believe that this actually could work and fix our autoimmune disorder and allow us to eat what we want again?

Has anyone else watched this documentary yet?

I really enjoyed it. I like the seriousness and comedy combined. Just wanted to see what other ppl thought.

You can watch it free on Plex TV with ads.

I just got thrown a huge curveball. My doctor decided to get me tested for celiac because I had some symptoms that fit it and we were trying to rule it out as a possibility. Now I’ve never had the severe stomach pain or vomiting or cramping or weight loss or anything like that, so I didn’t even think celiac was an option. I’ve been dealing with fatigue, bone pain, headaches, brain fog and the like for years so that’s why I was tested (I wasn’t really aware celiac had non GI symptoms). Long story short labs came back 158.8 and my current doctor said I don’t even need a biopsy because I was so high above the average. Apparently that’s a rule, I don’t know. I have confirmation bloodwork on Monday I believe, and I honestly don’t know what to think. I’m turning 17 next month and both my parents are getting tested because we have no clue who this came from. There wasn’t any issues with Celiac in my family so it was never looked into prior. This is like the one chronic illness I wasn’t expecting. I also have Hashimotos if that’s relevant in any way. I will be talking to my doctor further and consulting a dietitian and pharmacist, and I’m not asking for medical advice; I was just wondering if anybody had a similar experience as me who could share some tips on how to deal with this.

Basically what the title says, but last night I got glutened quite badly, so I was stuck in the bathroom till around 3am. This weekend was supposed to be pretty much entirely studying since I have three difficult midterms this week. Now my brain is all foggy and I hardly have energy to study since all I can eat right now are crackers and applesauce. I’m stressed out about my exams and this certainly didn’t help. I’ve got accommodations for a 24h extension on any assignments when this happens, but I don’t think it translates to exams, and I’m not even sure if 24h would help since my brain fog usually lasts a good week or two. I’m just so tired of this. You would think after 15+ years of being celiac I would sort of get used to the annoyance of it, but I swear this always happens at the worst possible time! Sorry for the rant, I’m just tired of this and really hope it doesn’t affect my exams and grades!

For those of you who lived at college on a meal plan with celiac disease, how was it? A lot of cases I’ve heard about are not good. What did you do to stay safe? One person wrote about their time online and in their case posted after leaving before receiving a response shortly afterward. I’d love to hear your thoughts as to what you think of it. (The Terrible Gluten Free Experience post on HubPages can be found easily via an Internet search, the subsequent response reference is near the end of the initial article.)

Best products for lovers of buttery breakfast biscuits and glazed/chocolate frosted donuts?

I have access to HEB, Central Market, Walmart, Sam’s Club, and Trader Joe’s.

Some context, I'm was on a family vacation to Orlando, FL. I'll say, there is a lot of accommodating places here, more than where I'm from, even went to the gluten free bakery in Disney Springs. But I'm so sick of my family not being accommodating. It's been 6 years since I've been diagnosed and it feels like the only people who actually care about me not getting sick is my partner and my best friends.

My brother and sister-in-law are "foodies" and they always want to go to xyz and try everything and share things eith the table and all that other junk. Every time, I have to put my foot down and advocate for myself and tell them again and again why I can't eat that, why I feel unsafe at this place, blah blah blah. It's exhausting. It's always on me to find a place to eat all together and I get that, but like its been 6 years. They know I solely go by reviews on the find me gluten free app, can you not just download a fucking app?

Side rant as to all the general family vacation stuff. This time, for half the trip, sister-in-law invited her friend who lives down here to spend some days with us. She says she thinks she's celiac but doesn't care because she doesn't want to know. So EVERY place s-i-l reccomended, she would add on like oh yeah you can eat there, and then it would have absolutely awful reviews or none at all. I had to explain to her cross contamination. And she kept "cheating" and eating all the things she shouldn't eat and then WOULDN'T STOP COMPLAINING ABOUT IT.

Anyways rant over thanks for reading lol.

I’m a diagnosed celiac and I work in a touring gig part time. My schedule usually does not allow for groceries to be bought nor do I ever have a place to cook or refrigerate things in hotels, which means I have to order food a lot. Like almost all of the time. I more often than not eat my only meal of the day at like 11pm in a hotel just off the highway and can rarely find anything that has gluten free options save for like a shake shack or a Denny’s. As I’m getting older I’m trying to take my celiac more seriously, and I’ve realized that most of the fast food places that advertise gluten free options are not actually celiac safe. Which kind of eliminates my only options for meals. What am I supposed to do here? Is there anyone here that has similar circumstances and can give advice on how to manage this long term. Preferably something that isn’t just get a new job lol.

TLDR: I work in touring and when I’m on tour I can’t cook anything or find anything to fucking eat lol help me survive pls.

Was diagnosed with celiac in the spring, and have been doing okay in terms of avoiding gluten or so I thought. Have been having intermittent stomach issues here and there that have been pretty permanent over the last 2ish weeks, bloodwork concluded I am still getting glutened.

I’ve been trying to be very careful about the foods I eat, cross contamination, and have been trying to eliminate possible culprits like my supplements, toothpaste, etc. I feel like at this point the culprit is likely 1 of 2 prescription meds I take, conveniently I refilled both of them within the last month so it’s not a clear cut obvious answer.

I have been off of one for anxiety (safely, and it’s not an SSRI so not a ton of complicated withdrawal things to worry about) for 1 day but as I type this my stomach is making noises that have me thinking its the other med, a generic for flomax. I did call the manufacturer who confirmed the med itself is gluten free and while they don’t test their meds for certified gluten free, they do clean the machinery/equipment used to manufacture their drugs between batches.

Even with that in mind, do we still think it’s possible it’s that one doing me in? Otherwise, I’m at a complete and total loss.

'Gluten free! ' 'Allergen friendly!'

'Biscuits' lmfaooooooo how is it gluten free if it has biscuits

What would you replace in your now gluten free kitchen that you used in your gluten eating kitchen?

Is it possible to cohab safely with gluten eaters lol? How do you talk to roommates about wanting a dedicated gluten free home? It feels selfish to ask non-Celiac people to have to be GF as well.

I need help, I finally took my daughter to the pediatrician about 2 weeks ago, Last week I took her to get the blood work (TTG IGa antibodies and total IGA) ordered by the Doctor which I will be picking up first thing Monday morning since they send it out to another lab (I live outside the us in the Dominican Republic) One of the tests the doctor asked for was Calprotectin in a stool sample....

What worries me is that she has become super constipated since she has had to eat gluten constantly, and its been a pain trying to get this sample .. her last bowel movement was last saturday, way after the lab closed and since then she hasn't done anything, she goes to school so i can't know if she has gone at school or not, and she says she hasnt.

I have tried so many natural things to help, Prunes, more water, herbal teas. and I know Gluten free isn't an option since this specific test measures bowel inflamation.. I can't give her laxatives or supositories. The E.R. won't do much bcause they need authorization from her doctor and the lab says I just have to wait for it, and also if i take her to the Doctor i have to do another Co-Pay since it will be 3 weeks since our last visit and My insurance has been messing me around.

Please any advice would be greatly appreciated and sorry for the long post