(Feel free to tell me if you relate or don't relate to what I'm feeling, and why)
I don't even know how to explain what I've been feeling lately. I think I'm just tired, emotionally more than anything.
Psoriasis has been weighing on me so much recently. It's not just about having patches on my skin or dealing with the physical discomfort. It's the way it makes me feel about myself, the way it affects my thoughts, and how easily something as simple as looking at my skin can ruin my entire mood.
I'm tired of having to think about my skin all the time. I'm tired of worrying about whether it's going to get worse, where the next flare might appear, and how much of my life it's going to affect. I hate how something I have no control over can take up so much space in my mind.
But honestly, the hardest part is what it makes me feel about my future.
Sometimes I think about love and relationships, and I get this horrible feeling in my chest. I wonder if someone could genuinely love me and still accept my psoriasis. (Keep in mind that I live in a society where psoriasis is being looked at in a very negative point of view, and this is scientifically proved unfortunately) I wonder if someone would hesitate to touch me, feel uncomfortable seeing my skin, or look at me differently after finding out I have this condition.
Living in a society where appearance and marriage can carry so much weight makes these thoughts even harder to ignore. I worry that something I never chose and cannot simply get rid of could make it harder for someone to accept me.
And I hate that psoriasis has made me question things that shouldn't even be questions. Whether I'll be desirable. Whether someone will find me beautiful. Whether I'll be able to feel completely comfortable in my own skin around another person without worrying about what they might think.
I know psoriasis isn't contagious. I know it's a medical condition, not something shameful. I know all the logical things I'm supposed to remind myself of. But knowing these things doesn't automatically stop me from feeling insecure or being afraid of how other people might react.
Lately, I've been feeling this emptiness that I can't really explain. It's like I'm grieving something, even though I don't know exactly what. Maybe it's the feeling of not being able to live in my body without constantly thinking about it. Maybe it's the fear of what the future holds. Maybe I'm just exhausted from carrying all these thoughts around.
And sometimes I feel guilty for being this upset about a skin condition. I tell myself that there are worse things people go through, and that I should be grateful for what I have. But I don't think gratitude and sadness are mutually exclusive. I can appreciate my life and still struggle with something that genuinely hurts me.
I don't want psoriasis to define me, but sometimes it feels like it's affecting the way I see myself more than I want to admit. I wish I could just exist without thinking about my skin, without worrying about someone noticing it, and without wondering whether it will affect my chances of being loved.
I don't really know what I need to hear. I guess I just want to talk to people who understand what it's like to deal with the emotional side of this condition, especially the loneliness, the insecurity, and the fear that it might affect your relationships.
I'm tired of constantly thinking about my skin. I'm tired of worrying about whether it's going to get worse, whether new areas will be affected, and how much more of my life this condition will take over. Even when I'm trying to focus on something else, it's always somewhere in the back of my mind. A flare up isn't just a change in your skin. It can affect your entire mood, your confidence, your daily routine, and your ability to feel at peace with yourself.

It’s driving me nuts!

Tried steroids, feels like when I come off it comes back worse every time.

Tried tar, the smell just is too awful.

Lastly I’ve tried only topical vitamin D, which helps, but is messy (we only get the ointment here in Norway, not the solution).

I’ll be continuing using the vit D salve, but anyone has any other helpful tips or tricks?

The itching is just so bad, I am aware of my scalp most of the day. The shedding is awful and I feel so unhygenic.

Thanks for reading:)

On Medicare and the price of Temfya is ridiculous. Anyway to get it cheaper?

Hey just wondering if anyone on here is in the Kootenays and how their condition has been the last few weeks? I used my regular steroid gel but I went full out for a couple days, putting it all over after a shower for two days in a row because I had a trip coming up. It cleared but then came back really strong and now I am suffering. I read that this happens and I should have just stuck to using smaller amounts of the gel 😣 anyway then I wondered if the climate this time of year is also getting any others. Seems to be really dry and starting to get chilly.
Let me know what your experience has been if you’re in this area!

Please, someone help me 😭 I’m having the worst sebopsoriasis flare-up. Last October, I had the same flare-up, so I visited a dermatologist who prescribed me a bunch of medications. They worked, and my skin stayed clear for around 3–4 months after that. I stopped using them, and during the summer, I started experiencing flare-ups again, but they weren’t that bad. My scalp would only get itchy when it became sweaty, and my face wasn’t as dry, although the redness was still there.

In September, I visited another dermatologist who prescribed itraconazole and methylprednisolone aceponate for my face. My skin cleared up completely, and everyone was complimenting it, but as soon as I stopped using the medication, the flare-up came back 😭 Now, my face is as bad as it was last October, and my scalp also has dry, red patches.

hi all, I've been doing weekly MTX shots (+ folic acid) since July and nothing's really happened. my sores are still there and I'm seeing new ones. and my liver values are up in my blood tests (I admit I didn't quit alcohol 100%). Anyways, I'm off the booz now and kinda seeing if it's worth continuing. I'm up for another 3 months til done. But I don't see progress, and I have more and more small patches in back and arms. it sucks. anyone else here who did this? thanks

Realllly really hoping Tremfya will help with my Plaque Psoriasis. First biologic medication I’ve ever had to be on, I’m nervous but desperate at this point. This. Freaking. Sucks. & it just keeps just getting worse & worse?!

(Win for the curls helping hide it 🥴 sorry for the dirty mirror)

Also jumped through all the hoops for insurance to finally approve it. Wanted to charge me $5,212?! Signed up for Tremfyas Co-Pay assistance. Just hoping & praying it will all work out. Actively trying to stay positive rn.

& I’m almost 30 with no previous flares. Both my mom & dad have psoriasis as well- but this just feels extreme to come out of nowhere. (Or maybe more normal than I think?)

How long have people gone between regression and a relapse? I had severe plaque on the entirety of the back of my body and face. After a 2 months of Enstillar I've been relatively free of it on my body. Still get regular scalp flare ups.

I had scalp psoriasis for many years but I have an embarrassing problem that has never happened before. It feels like underneath the skin there are large solid scales, the only way I can describe them is like lose plastic? Idk, I’m going insane. I’m not about to peel my scalp skin to get rid of the scales, but I don’t know how to treat this. I have bethametazone + vit b on the mail and my derm is working on getting a new biologic for me. What is happening.

This post is about my partner, not myself. I’ve seen him struggle with psoriasis for the past decade, he’s tried many treatments and diets, but all with little to no improvement, some treatments help a little better than others, like light therapy, but it requires a lot of effort going to the clinic weekly and doing the bulb thing at home for an hour each day, so the energy to keep up with those treatments faded over time, and it seems like he is just done with it all and gave up now.

I know he’s struggling, he’s in pain and embarrassed, there’s not a piece of skin not affected at this point. It seems like it’s not even flare-ups anymore, it’s a constant state of massive patches. I want to help him but I cant get him enthusiastic about seeing a doctor again. He’s treatment-burned-out Is there anything, in your experience, that helped in a minimal invasive way? I’m sure things have developed over the past ten years, perhaps there’s more out there that he might be up for trying.

(He definitely doesn’t want steroid crème again because he’d have to soak his whole body, and iffy about that much steroids)

Thank you!

Or another autoimmune disease? I know these bitches cluster.

My doctor prescribed the Halox one for my scalp while the HBSALIC for the rest of my body.

I checked the label and everything.. it's totally same..

Can soembody please give me a reason to why my dermat gave me two of the same thing. I've been wondering the same for a while.

Anyone here on Tirzepatide/Zepbound and had psoriasis flares? Has the GLP1 made a difference on your psoriasis? I have psoriasis on my fingers also, but my scalp is what’s going crazy right now. I’m 6 months in/54 pounds down on Tirzepatide and having a psoriasis flare. My scalp is going nuts. I woke up in the middle of the last night and covered my scalp in Clobetasol because I couldn’t sleep for the intense itching. I know GLP1s are supposed to make it better but for me I think the weight loss and GLP1 have actually made it worse. I will gladly accept any suggestions.

Alphosyl was the only thing that worked for me and I was fortunate enough to have stocked up before it was discontinued, but I’ve spent the last 2 years trying g everything I can with no success. None of the other coal tar products work, the topical steroid from my GP doesn’t work.

Has anyone else who found Alphosyl was the holy grail product managed to find a solution?

Hi!

Please recommend psoriasis-friendly foundation or powder to cover redness and bumps.

I have oily skin and I live in a tropical country.

Thank you!

For those living with psoriatic arthritis, what’s something you wish friends, family, coworkers, or even strangers understood better?

Thought this was interesting and possibly of some use for anyone looking for something else to try. This is a AI (Gemini) summary but it's a pretty good summary of things:

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Glutathione shows promise as an emerging, supportive option for managing psoriasis, but it is not currently established as a standalone cure or standard primary treatment. Clinical research indicates that individuals with psoriasis typically exhibit significantly depleted levels of glutathione and high systemic oxidative stress. Because glutathione acts as the body's "master antioxidant," correcting this deficiency helps calm the systemic inflammation and rapid skin cell turnover characteristic of the disease. [1, 2, 3]

The Medical Link Between Glutathione and Psoriasis

Psoriasis is a chronic autoimmune condition driven by accelerated skin cell proliferation. Under normal conditions, skin cells mature and shed over a month; in psoriatic tissue, this happens in mere days. [1, 2]

• Oxidative Stress Driver: An imbalance between free radicals and the body's antioxidant defenses shifts the body's "redox" balance, signaling skin cells to replicate abnormally fast. [1, 2]
• Deficiency Cycle: Studies published in journals like Frontiers in Medicine show that low baseline glutathione directly correlates with a spike in psoriatic inflammation. When glutathione levels are depleted, the immune system lacks the necessary brakes to temper inflammatory flare-ups. [1, 2]

Current Clinical Evidence

While wide-scale, longitudinal clinical trials are still limited, small pilot studies and clinical case reports have shown encouraging results:

• Oral Glutathione-Enhancers: In a prospective pilot study published in the Journal of Clinical and Aesthetic Dermatology, patients with psoriasis vulgaris were given 20 grams of nondenatured bioactive whey protein isolate daily (which supplies the building blocks to boost cellular glutathione). Over three months, patients demonstrated measurable clinical improvements in their Psoriasis Area and Severity Index (PASI) scores, whether they used the supplement as a standalone or alongside topical therapies and UVB light therapy. [1, 2, 3]
• Intravenous (IV) Glutathione: Case reports have tracked rapid improvements using IV glutathione. A clinical case study of a patient with severe scalp psoriasis noted a 40% to 50% reduction in lesions, scaling, and itching within two weeks of initiating high-dose IV glutathione. However, the study also noted that symptoms relapsed after three months without maintenance dosing, highlighting that it manages rather than cures the underlying pathology. [1]
• Prescription Pathways: The established psoriasis medication Dimethyl fumarate (DMF) operates heavily within this pathway. It interacts with glutathione-S transferase and modulates the Nrf2 transcription factor to reduce keratinocyte hyperproliferation and systemic inflammation. [1, 2]

Delivery Methods and Bioavailability

Standard oral glutathione tablets are notorious for poor absorption, as digestive enzymes break the molecule down before it reaches the bloodstream. If you look to integrate glutathione, alternative administration routes are usually favored by practitioners:

• Liposomal Glutathione: Formulations that encapsulate glutathione in a lipid layer protect it through the digestive tract. Clinical data suggests liposomal delivery can increase bioavailability significantly over standard tablets.
• Precursor Supplementation: Taking precursors like N-acetylcysteine (NAC), L-cysteine, or specialized whey protein isolates allows your liver to synthesize its own glutathione internally.
• Dietary Support: Consuming sulfur-rich and antioxidant-heavy foods like avocado, asparagus, and spinach helps support the body's natural antioxidant synthesis. [1, 2, 3]

Always consult your dermatologist or primary healthcare provider before introducing high-dose glutathione or its precursors into your regimen, especially if you are currently using systemic immunosuppressants or biological therapies for psoriasis.

This is for informational purposes only. For medical advice or diagnosis, consult a professional. AI responses may include mistakes.

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Probably the most accessible and effective way for most people to increase glutathione levels is to use what the summary calls "precursor supplementation" by supplementing "GlyNAC" which is glycine and NAC (N-acetylcysteine). The glycine is relatively harmless and of little risk but using the NAC in high doses (as usually required to increase glutathione levels to significant levels) has some risks and potential side effects, particularly gastrointestinal.

Note: in normal (no conditions such as psoriasis) humans there is usually very little benefit in increasing glutathione levels in someone under 40 or 50 years old. It's unknown if it might help someone much younger with chronic inflammatory conditions such as psoriasis.

Also a lot is unknown with this. For instance what happens if you take GlyNAC for a year or two and then stop? Can the body rebound back to normal levels of Glutathione or are you basically stuck having to take it for the rest of your life where stopping it makes things even worse than they were before you started?

"The Role of Glutathione-S Transferase in Psoriasis and Associated Comorbidities and the Effect of Dimethyl Fumarate in This Pathway"
https://pmc.ncbi.nlm.nih.gov/articles/PMC8863102/

Psoriasis Improvement in Patients Using Glutathione-enhancing, Nondenatured Whey Protein Isolate: A Pilot Study

https://pmc.ncbi.nlm.nih.gov/articles/PMC3805302/

https://www.healthline.com/health/glutathione-benefits

All the plaques in my scalp have cleared but the itching is still horrendous

Anyone have any non-steroid solutions? Preferably something that doesn’t mess with the hair

For those living with psoriatic arthritis, what’s something you wish friends, family, coworkers, or even strangers understood better?

I suffer from sebopsoriasis. I touch my scalp and I don't feel any sebderm buildup, but only my fingers get oily. My face and hair become so much oily.

When I wash my hair, so many hair falls out. I dont want to get bald at such a young age. I use regular shampoo and Selenium Sulphide shampoo alternate times.

I don't know what is happening. Maybe becoz I live in college hostel and water here is very bad (hard water)

Hair is also very thin extremely thin.

I am thinking to get buzzcut after 2 months once I reach home for my vacations.

I eat VitD and Zinc Supplements alternate days. I also eat Dutasteride alternate days.

I cannot afford expensive medicines or any treatment now.

I don't want to get bald at such young age.

Hair keeps calling 😭😭

Hi all,

I’m a student working on a hair care project designed specifically for people with scalp psoriasis or eczema.

The starting problem: regular shampoos often contain ingredients that trigger flares, and medicated shampoos treat the scalp but damage your hair. I want to understand whether a product that does both at once would actually make sense for you, before going further in development.

I’ve put together a short questionnaire (a few minutes) about a product concept. Your answers would help me a lot in refining the idea before testing it more broadly.

https://docs.google.com/forms/d/e/1FAIpQLSf6fHUh5v7_sosIMBB5hgTEQGe_fKNsOVYwB91pAu-lAynpBA/viewform?usp=header

If you’re also up for a 15-20 minute follow-up online interview, there’s a box at the end to leave your email.

Thanks in advance to anyone who takes the time to answer, it really matters for the project.
If you have any questions, please feel free to reach out :)

Found out I ended up getting psoriasis due to me being on immunotherapy (Keytruda) dealing with stage four cancer. They stopped my treatment for immunotherapy for now but they want me to now take Tremfya, which I just started on Friday.

Lately I noticed that after using some steroid creams like Fluocinonide mixed with CeraVe, clobetasol, and hydrocortisone I’ve noticed the clothes I wear smell of the medications and it’s still there after washing them. Am I going to have to buy new clothes and is there a way to save what clothes I do have of the medicine smell?

The psoriasis has completely covered my body so it’s not like it’s only one section of clothes that’s effected.

I think my daughter has it and was really hoping any of my autoimmune diseases would of skipped my kids