r/PSSD • • 21h ago

Awareness/Activism September 2026 PSSD Research/Awareness Update

22 Upvotes

Hello everyone,
Below is the roundup of all the best PSSD related news from last month in one spot.

--------------------------------------------------------------------------------------------------------------

PSSD Network Q3 Research Update

This Q3 2026 update highlights important PSSD research progress, new adverse-event data, efforts to improve PSSD recognition, and ongoing organizational developments.

PSSD In The Media

PSSD In Social Media

Clinical Acknowledgement/Recognition of PSSD

More Scientific Milestones


r/PSSD • • 11h ago

Symptoms - Non-sexual Can PSSD cause inability to visualize or imagine things in your mind? Does it reduce your natural creativity permanently?

12 Upvotes

This mostly NON-sexual.

Does anyone else feel like they cannot visualize things in their mind anymore?

Is this the same as "Aphantasia"?


r/PSSD • • 22h ago

Symptoms Widespread body numbness

13 Upvotes

How many here suffer from widespread body numbness alongside localised genital/erogenous numbness? It’s not a symptom I see mentioned as often as others but it really bothers me.


r/PSSD • • 19m ago

Personal Story thank you guys, you saved me

• Upvotes

I was about to take my first dose of escitalopram (10 mg) prescribed by my psychiatrist. I literally have the pill sitting on the table in front of me, but after reading about the potential side effects especially PSSD, I'm starting to think my social anxiety isn't severe enough to justify the risks lol

thank you all I'll do my best to spread awareness about this. I really wish psychiatrists were more upfront about these risks, cause mine said it's totally safe one of the safest SSRI


r/PSSD • • 20h ago

Symptoms Akathisia for 3 years after discontinuing Cipralex

3 Upvotes

How do you deal with extreme restlessness, agitation, and tic disorders?

I'm so ashamed to be around people that I'd rather just isolate myself all the time.

It's so hard to suppress this restlessness, and I always focus on it


r/PSSD • • 21h ago

Feedback Requested/Question What helped you with genital numbness and anorgasmia?

4 Upvotes

Please tell what help you with this ?
I need to do something


r/PSSD • • 2h ago

Health Anxiety and PSSD Lisdexamfetamine / Amphetamine-D / Amphetamine-D,L "Can reverse sexual dysfunction caused by psychiatric illness and by some drugs such as SSRIs, including decreased libido, erectile dysfunction, delayed ejaculation, and anorgasmia"

3 Upvotes

You can read about my PSSD-situation here:

M32: Helpless case, in hell for > 10 years after Citalopram : r/PSSD

I meanwhile sent > 1.000 e-mails to psychiatric, neurologic, urologic, andrologic and pharmacologic societies worldwide and to people who work in this field to ask for any kind of help. I got a reply from a sexual therapist from Munich who suggested Lisdexamfetamine. His source is: Stephen M. Stahl: Prescriber´s Guide. You can download the first version of this book here: Prescriber's Guide - Children and Adolescents: Volume 1: Stahl's Essential Psychopharmacology [1 ed.] 9781108446563, 9781108561402, 1108446566 - DOKUMEN.PUB

In the book, the three substances Lisdexamfetamine / Amphetamine-D / Amphetamine-D,L are claimed about: "Can reverse sexual dysfunction caused by psychiatric illness and by some drugs such as SSRIs, including decreased libido, erectile dysfunction, delayed ejaculation, and anorgasmia".

Has anyone of you tried one of these substances?


r/PSSD • • 2h ago

Symptoms - Sexual How common is numbness beyond just erogenous sensation loss?

3 Upvotes

Just to clarify, I’m non-PSSD, got my syndrome from ketoconazole and Covid, share all the symptoms with PSSD/PFS/PAS and others.

I noticed that some of us, regardless of their syndrome, have lost not only erogenous sensation of their genitals, but also tactile and temperature sensation. I, for example, barely feel touch, pain, hot and cold temperatures in my penis.

Most of you only lost temperature sensation in their glans for some reason, but an acquaintance of mine with PSSD whose numbness is similar to mine just told me that there are plenty of cases that lost all sensation in the entire genital region. So, how common do you think that is?


r/PSSD • • 10h ago

Symptoms - Non-sexual Any got affected skin and cognitive please comment

3 Upvotes

When you saw and symptoms of cognitive and skin


r/PSSD • • 16h ago

Frequently Asked Question (See FAQ) Is there treatment available to reverse pssd?

3 Upvotes

Is there treatment available to reverse pssd?


r/PSSD • • 6h ago

Symptoms - Sexual Men who don't have morning erections, do you also have erectile dysfunction (ED), or only absent morning erections?

2 Upvotes

​

I want to hear from as many men as possible who are experiencing these issues.

Do you have absent morning erections but normal erections during the day?

Do you have both absent morning erections and erectile dysfunction (ED)?

Do you have ED but still get morning erections?

Please share your experience and, if you're comfortable, your age and how long you've been experiencing these symptoms.

I'm looking for as many responses as possible because I've already lost many years trying to understand my own situation. Your answers could really help me understand whether other men experience the same thing.

Please take a moment to respond, even if it's just one line. I'd genuinely appreciate it.


r/PSSD • • 16h ago

Symptoms What are symptoms of pssd?

2 Upvotes

What are symptoms of pssd?


r/PSSD • • 20h ago

Treatment Options To Those Who Use Viagra/Sildenafil - How Frequently Can You Take Before It Loses Its Effects?

2 Upvotes

Hi there,

to those of you who benefit from Viagra, how often (per week) can you take before it loses its effects? I am curious about your experiences


r/PSSD • • 12h ago

Feedback Requested/Question Has anyone tried wet or dry fasting?

1 Upvotes

wondering if you tried did it help or harm you? I’m planning to do a 3 day wet fast I am healthy enough to do it but want to make sure people have done it before and doesn’t carry psd related risks


r/PSSD • • 17h ago

Frequently Asked Question (See FAQ) Has anyone undergone a penile Doppler test? What was your experience?

1 Upvotes

​

I have a few questions for people who have undergone a penile Doppler ultrasound:

What happens during the test? Could you explain the procedure step by step?

Who usually performs it—a urologist, a radiologist, or another specialist?

Is it safe? Are there any side effects or risks?

Does the test involve an injection into the penis? If yes, is it painful?

Why were you recommended this test? Was it for erectile dysfunction, lack of morning erections, or another reason?

How long does the test take, and how uncomfortable is it?

Is it possible to undergo the test without an injection?

I'd appreciate it if you could share your personal experiences, especially if you were initially nervous about the procedure.

Thank you!