r/CancerFamilySupport • u/Ok_Software3471 • 7h ago
So exhausted, just need to vent
I am so, so exhausted. My 44 year old husband has stage 4 gastric cancer and just had his first treatment (chemo
and immunotherapy on Thursday). We have to travel 2.5 hrs away for his treatment. Our kids (5 and 13) stayed with my parents (who are 73 and 81, so it’s a lot for them). Night before treatment, I got hardly any sleep because husband was up and down with a cough he’s had for 3 weeks and pain all night—probably also nerves. After his treatment, we went back to the apartment we were staying in (a friend has it for work but barely uses it so was letting us stay there). I said I have to take a nap before we drive home, it would not have been safe for me to drive with so little sleep. So, I napped. And when I woke up, husband had a fever. The on-call line said we had to go to the ER. They gave him IV antibiotics, did a chest x-ray, tons of bloodwork, and then discharged him with another abx prescription. We got back to apartment at 3 am and I got 4 hours of sleep. Next morning, I had to drive hour-long round trip to get abx from pharmacy because of big city rush hour. Got back to apartment and husband tried to help me clean up, but he got super fatigued, so I finished cleaning and packing. Then I drove us home, which took 3 hours due to traffic. I told him I had to sleep in our daughter’s room because I needed a solid 8-hrs sleep and knew his coughing and tossing/turning wouldn’t allow that. I’m like the mom of a newborn who wakes up to any movement or sound and has to check everything is ok. Finally got a good night’s sleep.
Now, it’s Saturday and we are just bumming at home with the kids. Husband is constipated from his pain meds and Zofran (despite days of Colace and Senna) and was getting so uncomfortable, he actually asked for an enema (which he has been totally opposed to until now). I gave it to him, and he was able to go, but he got feces on the floor and then forgot to close the toilet seat when flushing. For anyone lucky enough not to know, body fluids have to be treated as toxic for 72 hours after chemo, and flushing aerosolizes whatever is in the toilet). We only have one bathroom. So, following the instructions from his nurse, I donned gloves and a mask and washed the entire bathroom down with soap and water. Had to throw away all the toothbrushes and son’s hair products because they were all out when he flushed. Finally finished cleaning, put a load of laundry in, and sat down to have a sparkling water. Meanwhile, son is playing his trumpet and daughter is playing her keyboard in the living room with the TV on too, plus they’re bickering. I just lost it and broke down crying.