r/AutisticParents • • Jul 30 '26

Announcement AUTISTIC CHILD MEGATHREAD: PLEASE READ

161 Upvotes

Welcome to the Autistic Child Megathread. All posts with a focus on caring for autistic children will go here, and the thread will be stickied at the top of the board.

In the past few weeks, we've seen a huge influx of posts asking for advice regarding children's autism, rather than a parent's autism and support needs. There's been a lot of feedback coming in over the last couple of days voicing concerns that the sub is losing its focus. This is my solution for keeping this sub on track to maintain its primary purpose of providing support regarding the parents with autism and the challenges that can arise for us as autistic parents without overlooking the fact that many of us also have autistic children to care for. NTs are still welcome to respond to threads, post comments in the megathread, and post threads in the sub at large that relate to the autistic parents in their lives (for example, an NT asking for support regarding their spouse or guardian) so long as they adhere to the rules and keep it respectful.

Q: WHICH POSTS SHOULD GO IN THE MEGATHREAD?

A: ANY post where the primary purpose is navigating your child's autism should be submitted as a comment in the megathread instead of on the board at large. This applies regardless of whether or not the poster identifies as autistic.

If the post is focused on a parenting challenge arising from the parent's autism, it should be its own thread. A child's autism can be mentioned if you feel it's relevant, but your need for support, venting, outreach, or celebration shouldn't revolve around their autism.

Examples:

1. My daughter was just diagnosed with autism, I've had bad experiences with ABA. What other therapy options are there for her? The main focus is regarding treatment for your daughter: POST TO THE MEGATHREAD

2. I have audiosensitivities. My son is autistic, and his vocal stims are driving me towards burnout. How do I cope? The focus is on managing your own sensitivities: POST TO THE SUB AT LARGE

This was not an easy decision to make, and is not meant to disparage the challenges of raising an autistic child. However, there are several other resources available to tackle that task. Resources and communities geared towards support for the unique challenges of parenting as an autistic individual are almost nonexistent, and I will continue to do my best to preserve that as the primary purpose of this sub.

I will update the rules to reflect these changes in the upcoming week. The new rule has been added to the list as rule 3, and is currently being enforced. Please report any infringements, and I'll get them removed as soon as I can. Unfortunately, cyaos, the primary mod for the sub has chosen to leave the moderation team. As a mother of three kids under three years old, I can't give this sub the attention it needs if I'm the sole mod. Please keep an eye out for another stickied post in the coming days regarding mod recruitment. I am open to feedback regarding these changes and am willing to roll them back if it is not what the community wants.

Much love to all of you!

-Paige


r/AutisticParents • • Mar 12 '26

Announcement Changes

8 Upvotes

Posts now require flair in order to be posted. There are three choices which should be sufficient to cover what our range of topics appears to be.

I have also changed the user flair to address some concerns of users. We cannot address every permutation of the ND rainbow so they will all be broad.


r/AutisticParents • • 1d ago

Seeking Tips/Tricks Becoming okay with being “weird”

7 Upvotes

Hi all, I’m very new to autism as it had never come under my radar. It did now due to some behaviours I observed on my toddler and then myself. I reached out to my family to ask for some insight on my own behaviour at the same age my toddler is now, and so far it seems like I was very similar to them. The thing is, I get very affected at times when toddler doesn’t do things the ”normal“ way. It usually progresses from anxiety about how it might be my fault because of how I’ve raised them, to frustration they won’t just instantly do things like other children do, then despair they won’t be “reaching their full potential“. Now that I’ve found out we are so similar these feelings are even sadder when I look back at them because I can feel the disappointment in toddler/child me coming through. As for myself, as I got older (late teens/young adulthood) I developed a disdain to being perceived as quirky or peculiar. I found a lot of joy in being described as common, just like other girls, etc. I didn’t know where those feelings came from but now I’m getting the sense I have a very strong aversion to being perceived as different due to how I was treated when I manifested unusual behaviours growing up, so being seen as “normal” is basically euphoric to me. I don’t want my child to grow up to feel like I do, always trying to conform and being distressed if they don’t. I don’t want to feel that way myself anymore.

Please share how you help yourself be okay with being “different“ and how you transmit that confidence to your children.


r/AutisticParents • • 2d ago

Question What would you say or do in this situation?

13 Upvotes

So we drove 3 hrs(one way) over the weekend to take our kids to Boo at the Zoo. We get there, only to discover they stopped doing it because of the rain, so we walk through the zoo anyways. It’s really disappointing because we’ve managed years in a row. But the craziest part happened while we were trying to get back to the car. So at this particular Zoo, they offer trams to the other side of the park or to the entrance to leave. The regular tram had just filled so we were in line for the next one. A small shuttle pulls up. We fold the stroller and loaded it as people moved past us, the driver, was a quiet older woman. She did not count people like she should have and for whatever reason no one else was helping her(usually theres another worker counting people). We go to get on and theres no more seats. Our stroller is already strapped in on the front. Apparently she had said standing for adults but kids had to be seated(but neither of us heard this). So we’re standing on this little shuttle bus with like 16 seats looking at all these people seated(1 newborn, 1 kid about 5yo, rest were adults 30ish and two older women), I tell the kids to sit in the floor because no seats were left, well it takes her saying we can’t move until the kids are IN a seat, and a few more extra awkward minutes, for the older lady next to us to offer her seat. Yes, an older woman gave up her seat before anyone else did. (Bless her). Were there other capable adults who could’ve moved? Yes. We didn’t all need seats, just the kids. They even shared that one seat. I find it ridiculous that that many people looked at us like 🤷‍♀️. No one even offered to switch and give her their seat either. Is there no compassion in the world today? What would you have said/done in this situation? I’m autistic and non confrontational but like wtf is happening?! Is the world becoming that unfriendly to kids that they can’t even go to a KIDS ZOO EVENT?! I understand no one has to do anything but are people really that rude now?! What are the social rules now? Because I was taught to offer my seat to elderly/pregnant. Hold the door open. Do little things that help others; even without them noticing. I am still in disbelief over this.


r/AutisticParents • • 3d ago

Support Needed Just trying to give myself space to rest

5 Upvotes

I’m autistic trying to recover from burnout. Spent the weekend managing the under/over performing loop of my anxious ex and retreating 13 yo who is 2 criteria short of adhd and can’t track homework to save their life. The whole week d was giverhe kid space to recover from their bar mitzvah ask weekend and then push/support them through getting a mountain of overdue home work done. My ex spent most of the time dropping backhanded parenting insults while talking about finding a joint solution but offering none. I feel like a pancake today. No alone time. So much navigating irritating ambiguity and the worst part is I still don’t think my kid has the skills or system to manage their homework. Silver lining is they are incredibly bright but a genuine absentminded professor. My mom shamed me into creating my system. I’m exhausted. Recently unemployed and want virtual hugs and affirmation.


r/AutisticParents • • 4d ago

Venting/ No Advice Needed It's not getting easier.

61 Upvotes

Currently hiding and locked in my downstairs toilet, parenting has just become so much lately. And i only have one child...

I miss the days of just rotting in bed, with absolutely nothing on the agenda. Not having to always be somewhere or doing something, not having to clean up mess 24/7, not having an endless conveyer belt of laundry, not having to constantly think of healthy meals, grocery shopping, making the meals, for them to just go straight in the bin anyway. I miss silence, I miss going to the toilet and showering without being interrupted. I miss being able to potter about my house without a loud noisy small shadow following behind me creating destruction, asking me a million questions while doing so. I miss being able to get stuff done, clean my house in peace instead of listening to screaming and crying because I wont give him the vacuum. I cant do anything anymore without added tantrums. I'm getting whiplash off the utter unstable emotions from my son. Everything is a battle, everything needs to be negotiated, everything results in tears. (Usually me by the end of the day hah)

I'm so so mentally drained. I just want to be somewhere quiet and peaceful and just be. Be somewhere where I am not needed constantly, somewhere where time slows down. Maybe i take it much harder because of my autism, but i dont think people without children understand just how difficult it is. Once you have a child and get on that rollercoaster, it doesn't stop. Like at all. Everything goes full speed, and keeps on going, and you cant get off.

Sorry for the rant, I just needed to get this off my chest to hopefully some like minded people.


r/AutisticParents • • 3d ago

Seeking Tips/Tricks Going from 1 to 2 when mom and toddler have ASD / ADHD

8 Upvotes

I’m due with baby #2 (yay!) in about 3 weeks. Both my 3yo and I (38f) were diagnosed as level 1 ASD this year. We both probably have ADHD too, I’m still working on a diagnosis for myself.

My mental health was rough postpartum with my son who was colicky and had some feeding difficulties. Like his mama he sucked at napping 🫠. Becoming a mom made me realize I had more than just depression and anxiety tbh.

I’m trying to prepare myself for having a newborn while also have a smart but stubborn/hyper 3 yo. The unpredictability of kids and how loud they are is extremely overstimulating. The lack of sleep is brutal. I have a therapist and I plan to keep my son in his daycare after baby comes for everyone’s sake. I plan to breastfeed again so unfortunately it’s unlikely I can get an antidepressant besides Zoloft or lexapro or get on ADHD meds. Edit to add: I never been on ADHD meds but think they’d help me a lot.

Any tips from other ASD parents who went from 1 to 2? I have 12 weeks of leave and my husband is also taking 12 weeks, thank goodness. We don’t have family capable of helping but have a small village of friends who can help in a pinch.


r/AutisticParents • • 5d ago

Seeking Tips/Tricks Looking for a Family Command Center – Calendar, To-Do Lists & Weekly Planning

10 Upvotes

Hi everyone!
I’m an autistic mum to a 3-year-old, with a new baby arriving soon, and I’m looking for ideas to make our family planning a little easier.
I’d love to set up a large planning board on our kitchen wall where we can keep everything organised and visible in one place. Ideally, it would include:
A family calendar to keep track of appointments and activities.
Daily and weekly planning, including weekend plans.
Important plans and routines, such as our plan for labour and the transition when the new baby arrives.
To-do lists and reminders.
Space for any other important information we need to keep in sight.
I initially considered building a digital e-ink board using a Raspberry Pi, but I realised it would be too much work to set up and maintain. I’d much prefer a simple, practical, analogue solution that we can easily update and use every day.
Has anyone found a good system or combination of products that works well for this? I’m open to magnetic whiteboards, corkboards, modular planning boards, or other creative ideas.
One important detail: we live in Sweden, so I’m looking for products that are available to buy here.
I’d love to hear what has worked for your family, especially if you have a system that makes everyday life feel a little more manageable. Thank you! ❤️


r/AutisticParents • • 5d ago

Question Hosting playdates

7 Upvotes

I was talking with another parent and they mentioned they have the neighborhood kids over all the time, and I realized my 7 year old has never really had a playdate at our house or someone else's. We've done lots of park playdates and meetups at activities, but not houses. Am I the only one?

I was diagnosed in the last year and just trying to figure things out as I realize some things I do are a bit different.


r/AutisticParents • • 7d ago

Sharing Tips Music tip for a peaceful dinner

13 Upvotes

I turned on some music while cooking noodles for dinner, and left it on while eating, and we're having just the most peaceful dinner.

The music: https://diodemilliampere.bandcamp.com/album/ymf262

Usually my 4 year old is playing with everything in reach on the table for 20 minutes instead of eating food, and my 2 year old is being loud.

Cute aside, while writing this post my daughter asked what game I was playing, and I said I was writing a message about how I like listening to this music during dinner in case anyone else wanted to try. And she was like "But you'll still have the music at that time?" And I was like "...?" And she was like "If someone else is playing the music, can you still listen to it?"

Anyway, all his albums are good, just linked the one I was listening to at the time.


r/AutisticParents • • 8d ago

Support Needed Autistic wife overstimulated and uncomfortable

15 Upvotes

We are around 9 weeks pregnant. And both ECSTATIC!! Had our first obgyn appointment today. The wife has been struggling with nausea and mood swings over the last few weeks with the recent news. Her breasts are sore, her sleep is off, her moods are off and on, and I can sense her social meter down more than normal.
Tonight She confided in me that she feels “weird” and “different” and as if the house we bought last year after our wedding was brand new and she was uncomfortable in it now like the first apartment we ever moved in together as a couple years ago. She was on the verge of tears trying to explain to me how she feels.
I brought up the fact that she’s autistic and that I’m positive there are hundred of thousands of people who have probably dealt with this before hand who might be kind enough to offer support and put into writing what it is she’s feeling. She immediately felt relieved.
So. What sort of feelings should she expect? What sort of things remedied these new feelings? Give us what you got.


r/AutisticParents • • 8d ago

Seeking Tips/Tricks Solo Audhd parent raising an Au/Dhd kid - searching for personal experiences and reads around that

16 Upvotes

Sounds like a niche right? Well, I assume there aren't specific books for that, as there's no 1 magic book for parenting at all. I was recently diagnosed with Adhd and Autism (after 15y of suspicions), and since I overcame my imposter syndrome around that, I can 200% say my kid is AT LEAST one big Adhd (from day 1 on the hospital crib). It's crystal clear. Also, I'm raising him alone all year long, and being a mother was not something I had ever planned in my life (never wanted to have children, and denied pregnancy).

He's turning 4y now. My autism has been off the charts for the last few months since my diagnosis. It only gave me explanations for why I'm like "so much" or "like this", but I don't know how I'm supposed to function with this. These last weeks I have just been losing my nerves again and again cause I think I gave 200% of myself and all the crumbs to raise my kid for the last 4y without even considering I had limits and boundaries. I already had a professional burnout before he arrived in my life, burnout that never seemed to stop.

We have been feeling quite poorly recently, with my nerves breaking A LOT (I just got the crazy eyes thing and snap totally, like I got to be isolated and having 0 talk or stimulation or I just scream for screaming).

I set alarms for everything to prevent being late at school, eating before one of us goes hypoglycemic and loses their mind, and it works. But two issues I've been facing recently are: there's no school tomorrow, so I'm ok having him watch a movie for a bit and delaying bedtime. But it's not him being horrible from tiredness after, but me realising suddenly how absolutely shattered I am and I just can't function at all anymore; I need to lie down asap. I would tell him literally, "Mum has been way over her limits tonight, and we really need to go to bed now", making bedtime routine the most direct possible."
But then we have the second issue: he's been sleeping with me every night since last January, and I thought that was ok, and we both sleep better that way. But it just felt like too much recently. Being in contact 1 to 1 all day every day is just so much. I also spend most of my days working from home, and I don't need to talk much - which I appreciate; I love silence basically. But after a certain time of the day, after we have dinner and shower, I just don't want to talk anymore. I tell him as well. I'm just explaining how mum functions, and really it's physically visceral: "I just can't talk or stay up anymore for today". And my kid is hyperventilating from having to sleep in his bed, breaking my heart literally. I've told him we should try 1 on 2 times in his bed etc., instead of doing breaking loose after 5 days of trying.

Well, I've considered having him a nanny for Wednesday afternoons (no school in my country), and half the holidays (8 weeks not including 2 months of summer holidays, so basically 4 months off school by year), where I am 24H/24 with him. Also, I'm very isolated and don't have friends where I live. I left all my life abroad behind me to get closer to my parents, hoping they would bring support. My mum does, but she's old and has her boundaries; my dad just says, "I'm crazy", to sum up.

I am seen by my doctor and psychiatrist for meds, which seems to work fine (with ritalin recently). They know my situation. There would be so much more to say, but I think I gave an objective portrait of what is going on recently. I listen to a lot of podcasts, but I feel they never dig into those subjects. I've been thinking of seeing a child psychologist to help us go through the coming years too. Any hint around what kind of specific professional could assist us?

I wish someone went through even 30% of what I've been through and had a PhD about it to help mothers like me.

How is one solo parent with AuDhd supposed to raise their kid with Au/Dhd when they have no clue themselves how to function at first ? What's basic parenting without even taking Neuro traits into account? Where are the boundaries? Healthy limits over our own "morale" or our respective cultures? How can 1 person successfully raise a kid without burning themselves out and hoping that kid will have a solid head on their shoulders?

If my story makes you think of any names, books, or any literature I can dig around in, please don't hesitate. And if you have any similar personal story with more experience or background I could use, please, cause I have never felt so alone and misunderstood in my entire life as being a single neurodivergent mother for the last 4 years.

Also, I'm French, so my English is not the best and can be blunt (autism is really here, and French are just also straight to the point), so please try to see where I'm just asking for help, not judgment. I really, really don't need to be brought down more. If you have anything mean to say, please don't. That's what I'm teaching my kid atm. "If you don't have something nice to say, sometimes it's better to not say it at all.". I'm expecting people in similar situations to answer, and so when you know, you know. Also, if you know where I should post my post somewhere else, please tell me. It's the first time I ever post in Reddit

Thanks to anyone who read me and will use their time to answer me. I feel like there's no other place I could find such specific help, support, advice, and recommendations. So thank you really if you take the time to answer me. 🫶


r/AutisticParents • • 9d ago

Question Baby coming

0 Upvotes

Hi, my daughter is 2.5 she’s talking and doing all the things. I have a boy on the way and am so scared of a speech delay and not getting to hear all the cute things or him being nonverbal. He will be here in 2 weeks and I just want the cute moments I have with my daughter, but feel like girls are always hyper verbal and then the boys are nonverbal or speech delayed :/


r/AutisticParents • • 10d ago

Question How do you maintain a village of help when you struggle with social interactions?

20 Upvotes

I believe I might be experiencing burnout, as a a parent I know an aspect of working through it is having help. I could possibly have some help from family and family friends but of course that means maintaining a relationship. Interactions are exhausting for me and I find it impossible to relax with others and not be hyper vigilant of what I should do or say next (and I still make so many little mistakes), so in maintaining relationships to get help I feel as exhausted as doing things on my own. I also struggle a lot with people becoming part of the rhythm we have as a family and end up being snappy with either people helping or my husband when routine doesn’t look like usual. We‘re considering a type of paid help but we would be able to afford a pretty limited amount of it. Even if we had a type of paid help, I still think I should learn to balance my socializing act to keep these relationships, so I have some questions for you all:

  • What enables you to balance maintaining relationships but not burning through your social battery constantly and adding to your burn out?
  • How do you help others as you also hope they help you?
  • How do you become okay with help meaning things are different than usual?

r/AutisticParents • • 11d ago

Seeking Tips/Tricks AuADHD husband struggling with baby

15 Upvotes

My husband is autistic (and ADHD but that's not relevant to this problem) and I'm neurological.

We have a 6 month old baby and I can see my husband is struggling a little bit and I'm not sure how to help him. Out baby is planned and we have spoken about parenthood in detail before making decisions.

Our baby is 6 months old. He is not crying a lot but he goes through a crying spell a day. He also started making adorable dinosaur noises - however my husband is clearly struggling with the noise. I have suggested loop earplugs but he said he doesn't want them. I can see he is very uncomfortable when my baby is making happy noises and it is quite upsetting for me as it's a normal developmental stage. I have noticed him shrieking when I was playing with our baby and he was squeaking and laughing.

We have started weaning now. Before the baby, i have stressed the importance of not wiping baby's mouth and hands all the time since they need to explore the textures (we are doing BLW). But he is trying to wipe baby's face, adjust his clothes all the time and interrupting him. I keep reminding him that we just need to embrace the mess and we will just bathe him and clean his chair. I am not sure if it's a normal behaviour that he just can't help himself?

Similarly, he tries to play with baby toys "the right way" - using stacking cups only in correct order and trying to correct if my baby picks up the "wrong" one. I have told him that he needs to let him explore and play and he will definitely not do things the right way - he is only 6 months, he doesn't know anything yet.

I guess I am a bit worried about the future, my baby will break things and get dirty and generally be a baby. How can I help my husband adjust to that? He is doing a great job with baby care generally, he is very involved and trying to do all the right things. But i worry he will limit my baby's exposure to the world a little bit. I obviously do not understand what it is like for him and he isn't great at expressing his needs when I ask

We have discussed this multiple times and he just keeps saying he's fine, but clearly isn't. How can I help him?


r/AutisticParents • • 11d ago

For Fun Let's talk christmas (gifts)

0 Upvotes

I would love to start a thread on ideas (or past wins) for Christmas gift ideas. I'm blanking on what to do for my 5 year old this year...on top of money being a little tight.

In the past we've had a huge success with a good quality pikler triangle. We got it when she was around 2 1/2. She still uses it almost every day.

**for reference she is 5, high functioning with suspected autism and adhd. But diagnosing girls with high masking and high functioning is difficult to impossible. Highly sensory seeking as well.


r/AutisticParents • • 13d ago

Support Needed Bedtime help!

6 Upvotes

Hello all, I am autistic and I am very sure my 4yo has ADHD. The past few days bedtime has become awful. We have a bedtime routine that we follow. However, recently, at the very end of it, my 4yo has started screaming, crying, making noises when I’m trying to get sibling to bed, refuses to listen, says “No, I don’t want to go to bed, I’m not tired”. I ask whats going on and they tell me “Im scared of (stuffies name)” which doesn’t make sense because they’ve slept with it over two years now. They have a nightlight and sound machine. I’ve even tried having them wait in another room and still was making noises so loud we could hear from rooms away. I need advice because it’s driving me crazy. I don’t like yelling. I just want them to be able to relax and go to sleep without the sudden meltdowns because they can’t recognize they’re tired and need sleep! Tonight it took almost two hours and I had to lay in the bed with them to get them to calm down and sleep. (Usually I’m able to rock in a rocking chair little sibling to sleep, then rock 4yo for a bit before they tell me they’re ready to lay down and I tuck them in). I would greatly appreciate any advice! Thank you!


r/AutisticParents • • 14d ago

Support Needed Autistic mom nightmare

22 Upvotes

I’m a 22-year-old autistic mother dealing with depression and anxiety. I’m considered “high functioning,” but I’ve always struggled a lot socially. Since giving birth, my depression and anxiety have gotten drastically worse, and my communication skills have gotten even harder. I feel so anxious that sometimes I can barely speak up for myself.
I’m in a situation where I promised my in-laws that I would move in with them postpartum, but I’ve kept pushing the date back because I haven’t felt ready. At this point, I don’t know if I’ll ever feel ready. They’re helping me with my 2-month-old, and I’m grateful for that, but being there has been extremely overwhelming for me.

They’re all very outgoing, and sometimes they’ll take my baby out of my arms. They’re also doing things I don’t want when it comes to raising my baby, like giving her screen time and co-sleeping with her. I’ve told my boyfriend that I need him to communicate my boundaries for me because I genuinely struggle to do it myself, but I’m not even sure how much he’s actually communicating because I keep seeing the same things happen.

I just cannot communicate there. There are his parents and three other people in the house, and it’s way too much for me socially and sensory-wise. I feel like a party pooper for wanting to hold my own baby, even though I’ve been the one taking care of her mostly on my own for these past two months. The only breaks I’ve really had have been shower breaks when my mom holds her. And I’m fine with that!

I hate having my baby away from me all day. It has gotten to the point where I can’t even go downstairs to eat with everyone. I have to ask my boyfriend to bring me food every day because I’m too anxious to go down there. I’ve been staying here this entire week hoping I’d feel better or more comfortable, but honestly, nothing has gotten better.

I’m starting to feel a lot of resentment toward everyone, and I know it isn’t their fault. I’m just incredibly frustrated with how anxious I am, how overwhelmed I feel, and how much I have to depend on my boyfriend to communicate for me.
I really am grateful that they’re trying to help. But honestly, the kind of help I need right now is pretty simple, someone cleaning my pump parts in the morning and giving me enough time to shower. I don’t need or want my baby away from me all day.

I think I’m just realizing that maybe I’m not ready to live with them, and I feel guilty because I promised I would. I’m not trying to be ungrateful. I’m just struggling so much right now, and I don’t know how to make anyone understand that.
I’m also grieving my breastfeeding journey since it didn’t go the way I wanted. I’m trying to bond with her as much as possible since baby won’t nurse :(


r/AutisticParents • • 15d ago

Support Needed Willful child breaks me

15 Upvotes

Background/context:

Diagnosed a few years ago, my 6yo is clearly a blend of my AuDHD-I and my husband's ADHD-H, but we haven't gotten him diagnosed yet. We are the social/emotional autistic flavor, and he has some developmental delays that cause him to be difficult to understand (he's in ST).

I have a short fuse. I've worked hard on my anger management because I grew up with a very yell-y dad (un-dx but v autistic lol) and I didn't want my son growing up like that.

The situation:

My kiddo has a tendency to ignore me. I know he can hear me because when I repeat myself he often says "I knooooow, I heard you". When I ask him why he didn't answer me he just says he doesn't know. I've told him repeatedly that I need him to say something, even if he's just asking for a moment.

This morning was the getting dressed fight. He ran to his beanbag to hide under a blanket and at first it was cute, we hid under there together for a minute. But when it was time to get dressed he wouldn't come out. I asked, then pleaded, then ordered, then started counting (usually that's when he knows I'm serious-serious). I never make it to 3, if he doesn't respond by two, I know that he's serious about his defiance, and it's about to go down.

I dropped my voice into my deepest register and raised my volume. Technically, I guess this would be yelling... But it's not my loudest. It's my "grumpy mama" voice. He knows when happy mama goes away and grumpy mama comes out, and he doesn't like it. I don't like it either.

Even that didn't work. I gently pulled him off the beanbag and started getting him dressed, asking him to stand up so I could put his pants on. He did the floppy ragdoll routine. I struggled. I got crankier. He started crying. When I was finally done I told him it was time to go downstairs to get breakfast, and I grabbed his stuffy and told him we're going downstairs and he can stay up here or come with us. He cried like I was stealing his favorite toy.

His dad was downstairs so I passed him off to Dad and went to eat my own breakfast. Meanwhile, cranky-monster-pants was in full defiance mode and threw his breakfast on the floor. Eventually Dad got the ship righted with some tickle monsters and a Pediasure "milkshake". But I'm still ruminating.

The ask:

How do I break this downward spiral of defiance begetting anger begetting defiance? Sometimes I'm able to break it by offering cartoons (that's a whole other post), but the longer this takes the less time we have, until there is zero time for even one Bluey. And of course, that pressure doesn't help.

How do I get him to not just listen but to hear me? We have a great relationship most of the time - I'm the cuddles and comfort parent and Dad is the routine and playtime parent. But with big love comes big feelings, and when our feelings go head to head, it gets explosive.


r/AutisticParents • • 15d ago

Support Needed Please share advice on how to cope as a parent

14 Upvotes

I am waiting to get assessed for autism after my 2.5 year old displayed some behaviours that led me to reflect on my own as I investigated how to help them.

My issue is that since they entered toddlerhood I’ve been having breakdowns pretty regularly, 3-4 days out of the week, sometimes multiple times a day. The main triggers being the constant touching, noise and defiance.  Didn’t help that as they entering the toddler stage I had to have a life saving surgery where I lost a pregnancy,  about half a year after that I got pregnant again (have an infant now) and in my first trimester my dad died. After that cluster of live events my resilience to day to day struggles reduced significantly. We also moved homes shortly after my youngest was born and after that I’m also struggling physically to do most things. And now I’m here feeling not fit to be a mom at all and unsure how to move forward. 

My husband works a job and a gig, studies and helps elderly parents while also helping our family. I don’t have family around and I don’t have any friends to even talk to. Friends and family of my husband sometimes help us out but it’s sparse, and I struggle to handle that help because it comes with social ties that are exhausting to me as I think about them too much and try hard in all encounters, as well as toddler acting up more or shutting down around others in a way that I find stressful to handle.

I am excited to get toddler help but I’m uncertain how much help that’ll be if I’m having such a hard time at home as I’m in charge of their day to day. 

Please share any insight on how to get out of the hole I’m in. I’m barely figuring out how to help my own sensory sensitivities to not become increasingly agitated on the daily, but I’m not sure there is a way to handle the unpredictable nature of toddlers with similar tools. 

To emphasize, I am looking for advice from neurodivergent parents about how to cope with parenting and its challenges. Please do not offer advice geared towards my child. Please no advice from neurotypical parents of autistic or otherwise neurodivergent children. 

I cross posted this.

Edit: Thank you all for making me feel like I can trust myself in what I’m experiencing, means a lot as someone who's only now beginning this journey.


r/AutisticParents • • 15d ago

Seeking Tips/Tricks Do you ever consider telling your kid you have autism?

24 Upvotes

My kid is 11, and is a pretty understanding and great kid. Sometimes there are moments where I can’t seem to balance certain aspects of my autism with being a parent, like explaining well enough that I have certain routines that I need to do a certain way and very much need to do them alone when possible, especially in the morning I need a good thirty minutes atleast to do my routine and then I jump into the morning and spend time with them.
It’s more than fine during the week since they’re at school but the weekends make me so nervous. Even my wife being home on her days off makes me nervous because I feel like she still doesn’t fully understand how rigid my routines can be. I worry my kid takes it personally at times no matter how much I explain it just helps to set me up for a good day. And now they have all of these holiday breaks coming up and I can feel how anxious I am just thinking about it. I struggle to advocate for myself as a whole, but especially at home I feel a good amount of guilt.
They know what autism is and has a friend with it so I guess I just wonder sometimes if it would click more for them if I admitted that I have autism rather than vague explanations, because explaining to them is almost an everyday thing at this point since they’re seem to not always take what I tell them seriously and forget.

EDIT- Thank you guys so much, seriously. because I don’t have any other autistic parents in my life I just tried to navigate majority of it on my own until reaching out on here. Making this post helped me to realize (and it feels so obvious now lol) that having that conversation with them could’ve easily happened and would have given them more opportunities to see why I act the way I do., as well as a better understanding with autism overall. They were tested and I was told my kid is non autistic so I viewed my autism as my own little journey rather than a learning experience for them and myself together, and I definitely got in my own head and overthought it all. So again, thanks so much and I feel very lucky to be a part of this group!


r/AutisticParents • • 17d ago

Question Is it weird for me to encourage my son to wave hello/goodbye to people?

17 Upvotes

Basically, I’m autistic. I don’t have great social skills and I’m always questioning myself whether I’m doing something correctly or if I’m being weird. I know there’s a chance my son might be autistic as there is a genetic component to autism. However, I have put a lot of effort into teaching my son social skills appropriate for his age (he’s 9 months).

He’s recently learned how to wave hello and goodbye, so regardless of who it is if I’m saying goodbye or hello I encourage him to do it too. Like I’ll ask him once or twice if he doesn’t do it I just move on, I don’t drag it out for ages until he does it (who’s got the time?)

Is it weird for me to do that?


r/AutisticParents • • 19d ago

Question Where to find mom friends?

15 Upvotes

How do you find friends who "fit"? I have a couple parents that I'm friendly with in passing, but going to the kids activities (7m, 1f), I have such a hard time with the chit chat and pretending everything is perfect. By the end of Cub scouts, gymnastics, soccer practice, ect, I feel like I've used up my social reservoir for the week and didn't actually connect with anyone.

So, where y'all hiding? Where do I find the people (in person) who relate?


r/AutisticParents • • 19d ago

Support Needed How do you explain to relatives they can’t stay overnight?

19 Upvotes

Hi,

I am 40 yo, diagnosed with autism 2 years ago. 3.5 yo son and pregnant in week 23+. We live in Sweden and family is in Poland. Before kids it was ok for me if my friends and family stayed overnight. But since some years ago I really don’t want anyone to stay over. I have my routines and can’t talk to anyone except for my husband and son in the morning. Also in the evenings I am exhausted and want to take it easy and not to have to mask how I feel. My family and my husband’s family don’t understand it. Even if I explain with details why, they complain and are unhappy. I am tired of having to explain myself every single time why it’s not ok for them to stay overnight. It’s ok that they stay in a hotel and we see each other during the day but mornings and evenings are out of question. How do you do it? Do your families understand or they ask and at unhappy every time?


r/AutisticParents • • 20d ago

Seeking Tips/Tricks Autistic mom need support

13 Upvotes

Hi,

I am 40 yo now and I found out I have autism 2 years ago. I have a 3.5 yo and home and currently 23+ weeks pregnant. I have a lot of problems with noise and sleep. Currently on sleeping pills that are safe for pregnancy but they make me very tired and headache in the morning. My husband sleeps in the same room with our son because I have troubles sleeping when the son is in my room. Also I cannot invite any family members over night because in the morning I am super irritated and need things to be silent and I need my time in the kitchen. Our son goes to preschool at 7 am in the morning and now my husband knows he has to let me be alone in the kitchen in the morning. In the weekends when my son comes to me in the morning I have such a headache and when he complains I need to cover my ears. I feel like such a terrible mom! And now we will have a baby soon in our home that I love already so much but I can’t imagine how hard it will be. Anyone else here with similar problems? How do you deal?