Is there a way i can do my audiometry tests at home ? using some app or something ? i want to check my audiometry often but it cost as we all know, so lemme know if there's other ways i can do so pls

ITS URGENT

Anybody else has an idea of what foods and drinks are better, im starting to go extreme levels to at least say "hey at least i tried" right now im quitting

Caffeine

Alcohol

sugar

Junk food

And foods with lots of sodium

Only water and mineral

Have you had success even if it was mild change? What do you recommend?

Whenever I see a post or a comment saying that we need to get certain groups or a billionaire involved in funding tinnitus research, I wonder if there is a way to make people understand just how many of us there are and how powerful we could be if we collectively took action.

It’s estimated that 1 to 2.3 percent of the world population suffers from severe tinnitus. That’s anywhere from 80 to 180 million people. There are so many of us that we could fund our own research by each donating a small amount. There are 78K people in this subreddit alone. I understand that not everyone has the means to donate, but if even half of us donated 40$ a year, we would raise over 1.5 million dollars a year for research. More funding would attract more researchers and would also help raise awareness.

While everyone living with severe tinnitus is desperate for a cure, it seems like very few of us are interested in donating to research. I’m wondering why that is, especially now that Tinnitus Quest exists.

What do you think it would take to get more sufferers involved?

I started taking Ubrelvy for migraine headaches and found that it helped to decrease the volume of the ringing in my ears, and sometimes it completely eliminated it. In fact, I wrote to the person in charge of research at Ubrelvy's parent company to let him know. Hoping the company might do some investigation into the ancillary benefits of the medicine.

New to me, but not new at r/tinnitus, this shows up in posts going back 9 years, dentists have an ultrasonic cleaning device called the Cavitron which just gave me the most catastrophic hearing injury of my life. I've had a few accidents that made me a tinnitus sufferer, but nothing like this. The Cavitron works by using high power ultrasonic waves with water to break up and dislodge tartar. It works really well, except the unfortunate patient has a 90 db high pitched screech 6 inches from their ears, and what feels like 150 db inside your skull through direct bone conduction. The FDA Med Watch program has many adverse event reports on this horrible device, the fact that it is still approved and commonly used shows the corruption of the FDA and the greed of the dental industry. Here is a quote from an adverse event report on the FDA website, I'm sure the person won't mind and might even be reading this. "I did not know that the scaling device sends a searing metallic high-pitched burst of noise".

I've done some research at Reddit r/DentalHygiene, and the scary thing is that the dental hygienists have no training and no clue that a 90 db device could cause any harm. They all run into this and just think the patients are being difficult (which is the argument I mentioned up top).

And if this has happened to you in the past, please by all means put in a report with the FDA MedWatch program here:

https://www.accessdata.fda.gov/scripts/medwatch/index.cfm?action=consumer.reporting1

It's the equivalent of a vote, maybe 1 vote does not make a difference but the FDA might do a review if there are more reports. Also, I know this is not the concussion Reddit, but I swear the ultrasonic vibration from the Cavitron messed up a few brain cells, I have the bad luck to know exactly what a concussion feels like and yes this feels like a concussion. The brain fog, the headache, the slight nausea, the dizziness and unsteadiness on my feet, yeah these are concussion symptoms. I think having high volume ultrasonic waves blasting through my skull damaged a few neurons.

Has anyone with mild/moderate hearing loss paired with tinnitus used these?

tldr at the bottom

been meaning to post this for while but please stop recommending people go get steroids for any type of ringing that’s not SSHL related. it’s only making people with recent onset tinnitus permanent/worse and mild tinnitus worse.

i’ve collected stories of people who got worse from steroids and only decided to jot down those that realized steroids worsened them but best believe there’s more stories i’ve read where steroids obviously was the cause for someone’s worsening but they didn’t realize. don’t even get me started on the stories in tinnitustalk that i didn’t even bother to jot down for my mental wellbeing.

this drug has people collecting unmaskable tinnitus, reactive tinnitus, noxacusis, dysacusis, and hyperacusis in random combos if they didn’t have them on onset. again i’m being very specific so if you’re someone who already had moderate to severe tinnitus well it’s obvious why you didn’t see a worsening. if you took steroids for ringing from acoustic trauma, a spike, shit even something like etd and felt like you got worse some time after i would take a good look at my timeline and symptoms because steroids are frying a lot of people. there’s a lot of people in this world with no tinnitus (people who saw it go away) and mild tinnitus and it’s not because they’re taking steroids.

i also get so sad seeing people who took steroids wondering why they aren’t seeing the same improvements as those that didn’t and they don’t make that connection. i don’t know why as a ear illness support community we have to wait for a medical official to tell us that a drug is making us worse, an official from the medical field that time and time again shows us they don’t care about tinnitus/hyperacusis.

i want to add that the result for the study for steroids regaining hearing is that it’s placebo meaning people regain some hearing regardless if they took steroids or not. it also doesn’t report the effects on tinnitus because that isn’t the focus of the study. THERE IS NO CURE FOR TINNITUS SO WHY WOULD STEROIDS ALL OF SUDDEN STOP IT. stop telling people to get steroids after acoustic trauma and see how many more people don’t return or will even post success stories. don’t even get me started on success stories with steroids that usually only go like this “i habituated to what steroids gave me” or “i’m taking benzos”. once you take that 20-150mg course, you’re no longer just noise induced you’re also medically induced. if you realize steroids worsened you message me and i will add your story to the list.

fuck tinnitus, fuck steroids

TL;DR: just a warning that steroids may worsen mild or recent-onset tinnitus and cause additional issues like hyperacusis and sound-related pain. I believe steroids are overrecommended for tinnitus caused by acoustic trauma and that most people improve naturally without them. i’m collecting stories from people who experienced worsening after taking steroids.

time to habituate to this bs

Been dealing with Tinnitus for 1.5 months, frequent-ish poster on here.

This shit is debilitating. I have now called out of work twice and today I just left early at 12:30. I cannot take this anymore. The ringing is SO volatile. Some days its good, some days its bad, some days its unbearable. There are NO triggers that I've found to make it better or worse. Im just at the mercy of it.

I recently moved into a 1bd and this has taken all of the joy out of living alone. I hate it. I hate life. I can't do anything anymore. I haven't felt serotonin in a month and a half. Reading is a struggle.

I am constantly nauseous and every morning it feels like I got punched by a professional boxer in the head. Headaches, inability to sleep, drowsy when I wake up, the inability to think clearly, etc. Ive been to two ENT's (one was very highly regarded) and my ears look picture perfect to them. My hearing tests came back above-average.

The highly regarded ENT said the next step would be to go to a neurologist because every test the ENT can do comes back normal. He said the neurologist may be able to look to see if there is any inflammation that can be causing the volatility. I got perscribed a weeks worth of prednisone to see if that helps...

Can a sinus infection permanently worsen tinnitus? I think that’s what I have, doctor prescribed me nose spray, but not helping. Going back on Monday. It’s not horrible, my ears aren’t clogged, but I have the plugged nose feel where I can still breathe through it with my mouth closed, but it’s a little rough, and have the headache and pressure feeling in my forehead, also feel oozy. I’m not sure I’m my tinnitus is louder or not right now. It’s pretty severe to begin with, but I’m just wondering has anyone experienced permanent worsening from sinus infections? If not how long did your spike last

Try medications, magnesium or something, black seed oil, any type of diet, hearing aids, neck massages, etc. I don't wanna lose hope. Even one doing thing atleast reduces it, just do it. Let's fucking try everything

I've had tinnitus since i was a kid (now 25) though IDK why i got it. It was just like that. I didn't even realize this was a condition until i discovered this subreddit.

Anyway, these past few days i've gotten bursts of short spikes that start to worry me. Usually they cleared after a couple of seconds/minutes & only affect one ear but they still make me keep my guard up. But now i've got another spike that lasts longer and it's still ringing as i typed this, in both ears...

i've got a headache on the side of my usual affected ear yesterday, and i'm worried if it's related....

I have a white noise machine & keep my AC running as an additional noise. Usually the AC is enough to cover the ringing. But this time the ringing just cut through the white noise.

I'm diagnosed with anxiety & one of the topics that i often freak out about is sleep. Even during normal nights I'm being kept awake from fear of not being able to sleep. So this situation doesn't really help. I'm so scared that this time i won't be able to sleep due to the ringing because my usual method doesn't seem to help 😭 how do you deal with it? I tried distracting myself but it's just so noticeable!

As you may know, I've made this mistake three times bursting 19khz pure tones from my speakers with an ambiental SPL of 70/75 db measured with a calibrated miniDSP UMIK-1. I initially had muscular jaw tension for a few days but seemingly no tinnitus, which appeared really high pitched about a week after. Went to an ENT which told me the exposures probably irritated my nerves and prescribed me cortisone and otocit. I'm still through therapy (about a half of the total). I'm seeing slight improvements over time: some instruments in music are strangely perceived like they're distorcing, and other environmental High frequency sounds are randomly amplified. I'm noticing the distortion and tinnitus are getting better and less prominent in some parts of the day, while they Spike during others. Even if the change is slight, it's positive. I don't really know whether it's my brain slowly recalibrating... or if this is due to a cochlear impact or to the fact that some synapses may be fucked now (as someone wrote in this sub)... since there"s no way to tell exactly what's going on with conventional exams. Don't even know if this is considered "dysacusis". Since only time will tell, and most people leave this sub once the problem is gone, I'll stay here and keep you updated in case of success... and eventually give you advice :)

If someone knows any better pls share... it would be precious for me 🥹. Thanks

Every year I swear... once the Cold weather hits and the room temperate drops, I ALWAYS Spike. For DAYS. Not ONCE my ringing would go through mildly once the cold weather hits! FUCK OFF!

Anyways.

How are you all doing Mentally? It's currently 4 am for me EST and this goddamn EEEEE on my right ear has been hitting me all day long since I woke up. Also a secondary sound in the back that sounds like this Electric static 90's tv airwave noise on top of the EEE. I'm trying... really trying...

Anybody here suffering a spike right now? Please, write your post right now on how your doing? Get the pain off, talk about anything.. I don't care... make me forget about the ring...

Hi guys! Tinnitus doesn't really effect me in my daily life, I really only notice it in a quiet car ride, when I have headphones on with no audio, or when im sitting in the bathroom or something. It's very faint in any other environment but I wish I didn't have it. Mainly because i'm a young teenager and there's just something about it that bothers me. I think it's sort of sadness and regret I didn't take care of my hearing and currently I'm doing as much as I can to stop it from progressing. Anyone else here got it young? Usually you'd think it's something only older people have/adults. But nope.

I went to an audiologist and it turns out I only have mild hearing loss in my left ear and it’s the tinnitus that has been making it so hard to understand what people are saying and hard to understand lyrics in many songs. The audiologist asked if I was curious about trying hearing aids and I said I’d be willing to try them (1) so that a family member who has profound hearing loss would see me wearing them and hopefully feel more willing to get some for herself and (2) if insurance covered all of it. For the latter, insurance covered most and the office ended up waiving the rest which was really nice.

I picked them up on Monday and the doctor that day said I may not notice anything because my hearing loss is so mild, but as soon as she clicked them on it was like I could physically feel my brain unclench. I had no idea my brain was working so hard to focus and make sense of the sounds around me. I experienced relief from the tinnitus I had learned to ignore for the first time in a decade. I cried. I just didn’t know how much of a relief it would be and I don’t even have that severe of a case, I thought.

That first day, much of the time things were normal, but there were many times where I noticed the hearing aids were compensating for something. In particular, I remember being able to converse at check out at the grocery store while bagging my groceries instead of pausing to stop crinkling the paper bag while they spoke and watching their face and mouth to make sure I understood them. I remember singing silly songs with my very young daughter and her high tones coming through so richly. I cried again wondering what else I’d been unknowingly missing out on or working so hard to comprehend. It made me feel like I’d been squinting to listen for the last decade and could finally relax.

I took them off for the day about an hour and a half ago and now I’m sitting in the quiet and really notice how loud my tinnitus actually is. I’d learned how to ignore it for so long but now when I’m out and about I can understand what people are saying in crowded/loud places the first time they say it. I’ve heard there are mixed reviews for people with tinnitus and I’m grateful that it worked for me and hope very much that other treatments work for the people that hearing aids don’t help. If you’re curious about them, go for it and just find out for yourself. Theres a trial period most of the time so if it doesn’t work you very likely can just return it.

I’ve had tinnitus for a year now. There’s been many ups and downs, but I was going through a good patch recently where my tinnitus wasn’t too bad.

Unfortunately, I just went through the worst chronic pain flare of my entire life this past week. I normally avoid NSAIDs like the plague due to tinnitus, but I was taking them every day because I was desperate for relief. I tried to not take too much, though. Istarted with 400mg of ibuprofen per day for three days and 2 500mg Tylenol per day, then I switched to one Naproxen plus Tylenol because Ibuprofen is trash for pain relief. attempted to start an SNRI (levominacipran) because my doctor thought it might help my pain (after failing many other nerve pain drugs). I stopped the antidepressant two days ago because I felt like it was interfering with my sleep, which was already very bad due to the pain. I only took it for a few days.

Today, I haven’t taken any NSAIDs at all, nor my antidepressant, and physically feel so much better, but suddenly, my tinnitus horrendously spiked. it was at a 2/10, now it‘s a solid 9/10 volume. I have no idea why it spiked NOW and not anytime over the past week and a half I was going through nerve pain hell and 4 hours of sleep per night.

Did I permanently worsen my tinnitus with the medications I used? I’ve been so scared to take anything for my pain because I’m terrified of worsening my tinnitus, and now the worst has happened.

I truly can not wait any longer for my doctor's appointment next week. The uncertainty about whether or not the discomfort I'm feeling is from a possible infection or me developing hyperacusis is killing me. I can't even say that I definitely think I've developed hyperacusis simply because most noises that many seem to commonly cause pain in those with hyperacusis don't really bother me, but again, I can't tell if I'm just lucky or if this stage is just the quiet before the storm. The clicking sound in my ear that I've been experiencing for the past week and a half has now become more consistent, and now I'm experiencing a persistent blocked feeling in my ear (left) along with crunching noises when I turn my neck. I only noticed the crunching today. I had a hair appointment and used foam earplugs throughout the entire blow-dry process, and I went to the post office (after hours to avoid crowds) to drop off some packages when I noticed that, when I turned my neck, I heard the loudest crunching noise/sensation. I've never had this happen before, and of course, shortly after, I started experiencing a dull burning sensation in my left ear that I can still feel as I'm typing this. I'm really trying not to freak out and panic, given that my left ear has been the one that gives me all these problems since my nasal congestion, and I'm really hoping it's just either an ear infection developing, ETD, or fluid in my ear that's not properly draining from the nasal issues. I can handle and live with the ringing, but I know for a fact that having hyperacusis will destroy me. I can't tell if this is the beginning of hyperacusis forming, but all I know is that I really, really don't want to develop it. I'm so fucking scared and tired of pretending everything is fine when it's not. Please, I'm begging: if anyone happens to read all of this, if you've experienced something similar or might have an idea of what might be happening, could you please give me some sort of guidance?

Today I visited a neurologist, hoping to find a treatment for the tinnitus that started 5 months ago. The doctor pressed hard on my cervical spine area, behind my ears, and around the TMJ zone, asking if I felt any pain. He prescribed a treatment and I went home. When I went to bed, I noticed that the tinnitus has increased significantly in my left ear, where up until now I only had a very faint sound. This new sound is bothering me so much that I cannot sleep. I deeply regret letting the doctor touch me like that and I don't know what to do. Has anyone else experienced anything similar?

Can someone help me understand why the tinnitus gets super loud after I'm at a noisy restaurant, bike ride, exercise etc... I'm new to this so trying to understand. What can I do about this? Looking for experienced people's recommendations.