r/stroke • u/Fizzchad505 • 11h ago
Young Stroke Survivor Discussion I had a spinal cord stroke..here's my story (M19)
So this happened to me pretty recently on May 14th 2026. I was laying in bed about to stretch and suddenly felt this deep pop at the back of my neck, as if you were too crack your knuckles kinda pop. It wasn't painful but the static pain I got in the back of my shoulders caused me to sweat, It was like my body had hit me with its own version of a lightning strike.
In the span of 1-3 hours I became completely paralysed from the neck down and although what happened to me was 1 in a million I got lucky in some way. First my left hand became paralysed then my right and shortly after my legs went too (the left then the right). Luckily my mum was home and I was able to go to her when I was still able to walk.
Eventually we rang the ambulance after we realised that I could no longer walk and I was like a ragdoll, I had no control over my own body and for the first time, I felt like I was close to death. I was forcing myself to manually breathe using all the strength I had left to just stay alive. I had never felt so close to the end than this point in my life. Since no one had any idea what was happening to me it took 2 FULL hours for the ambulance to arrive (we only live like 15-20 minutes away from the hospital). We even told the people on the phone that I couldn't move at all but still at the time it wasn't deemed as serious as it was.
Let's skip forward...I've been in hospital for about a month now and I am struggling.
I can't walk properly I can't go to the bathroom I feel filthy all the time and I'm constantly feeling vulnerable in front of everyone. I couldn't accept whats happened to me but still I have so much hope for myself. I look at other people's stories and see how I've actually gotten kinda lucky, I didn't need a tube in my throat and I could breath and eat food properly (with help).
Month 2 and I'm taking more and more steps every day, I am determined. I am in more control of my body and I feel better about my future! My hands still haven't come back yet...
Month 3 and I'm learning how to be more independent. I'm able to dress myself, brush my hair and get up to use the bathroom! I still have a few accidents but way less than when I first started out. I'm regaining my strength and I'm just starting to get the perfect physio...
Month 4 and I'm almost considered fully independent. My hands still aren't working and I was loosing hope until suddenly my right arm starts getting overly itchy and suddenly my fingers are twitching and wiggling! Nothing from my left hand just yet... I go to events and I'm standing/moving around enjoying myself.
And then I get dispatched from the hospital I was in and as of right now being home has been so hard.
I can't help out around the house like I used to, I used to be strong. I used to be efficient and artistic and now I struggle to just hold the tools I used to put hardly any thought into. I used to game and play online and now I can just about push one button at a time..I've only talked to one other guy that said that he felt that being at home was the most difficult and in some ways? Yes. But I'm proud of where I'm at now. I am getting stronger each day and I'm still learning how to adapt and fully control this new system my body has given to me. I want to be able to share my story and help others to get through theirs. I want to help advise others that it can get better. And it always does! It just takes time.
I couldn't have done this current journey without my family, girlfriend and friends. They have all stuck by me and made everything so much easier. I am lucky to have them and still have them now, this is truly the lowest I have ever been and for them all to still stick by me even if with how hard everything has been. So if anyone has read this to the end, thank you and whatever you are going through whether its the same or something completely different. Coming from someone who's life will be forever changed. It gets better, just keep pushing forward and keep on staying strong for yourself and for others.
I could go into more detail about my story but my hands still don't fully work lol so I'll have to end it here. :)
