r/specialneedsparenting • u/leakinprogress • 2h ago
r/specialneedsparenting • u/kashakesh • May 04 '23
User Poll: From the Mod (there's just one of me)
Hi there - we are a mighty 1600 members and from the activity, I think most of us are lurkers - which is A-OK. There are, however undesirable elements who lurk, and while I have taken certain measures to prevent this filth from being able to cause harm, I think we are down to two options:
- I get some help moderating
- I make the group private (other members can recruit and suggest members, just trying to weed out the crap)
- I let the wild, wild west occur and know that you were warned.
So, here's a poll to see what you, my fine parents, caretakers and other concerned members would like to have happen. I'll let you know from experience that a private group is nice to have - no one, who is not a member, can see your posts. I have this in another parenting group - it's a good sounding board sort of place.
r/specialneedsparenting • u/dalvabar • 2h ago
Thoughts on programs like Best Buddies or the Arc?
Hello, I am a small business owner looking to partner with either one of these organizations to donate product (it’s a baking mix company) and financial resources eventually. I’m particularly passionate about supporting caregivers and providing special needs kids with fun activities centered around baking or cooking and teaching vocational skills for older teens.
I’d love to hear peoples thoughts on these programs since they apparently have a national footprint. But I’m also very open to other organizations that are believed to be more impactful or reputable or perhaps more centered on cooking or baking skills and programs.
Thank you!!
r/specialneedsparenting • u/Electronic-Speed2994 • 20h ago
Disabled children of veterans are locked out of the education benefits they earned
My name is Tera. I'm a single mom in San Diego, and I started a petition because I've seen firsthand how broken this is.
A loved one of mine is autistic and in the Aspiring Scholars Program at Cal State San Marcos—a federally recognized college program for autistic students. His dad is a Marine with a 100% disability rating. He earned VA Chapter 35 education benefits. But here's the thing: the VA won't pay for his program because it doesn't grant a "standard" degree. It's a real college program with real outcomes—confidence, skills, inclusion. But because of a technicality, the benefits his family earned are locked away. He's not alone. Thousands of veterans' dependent children are stuck in the same situation.
I'm asking Congress, the VA, and California's legislature to make federally recognized Comprehensive Transition Programs eligible for VA Chapter 35 benefits and the CalVet College Fee Waiver. These families already earned these benefits. Their kids shouldn't be shut out over paperwork.
If this feels wrong to you too—or if you know someone this affects—would you consider signing and sharing? What would you want someone to do if this was your family?
r/specialneedsparenting • u/Rough-Preference4986 • 18h ago
Do you think she’s showing signs?
r/specialneedsparenting • u/FanMan2002 • 2d ago
Dolls For Inclusivity!
Was looking for a doll for my friend's daughter for Christmas, and I didn't know that this company Budsies makes dolls of people, and they match everything about the person. Wanted to share as a special gift idea for this year!
r/specialneedsparenting • u/Alarmed_Cookie1684 • 1d ago
Would you consider this an indicator of sexual abuse?
r/specialneedsparenting • u/Less-Prompt-3640 • 1d ago
Routines
Hi, found out our 7 year old with global developmental delay may have mild intellectual disability. I was wondering if anyone had advice about helping her become more independent with morning routines and getting dressed and ready for school. Has support at school and doing better with having trouble going in mornings. I’m not sure if the wanting us to dress her is just more of a comfort thing or even if I’m expecting something that isn’t realistic. Appreciate any advice anyone has from their experiences.
r/specialneedsparenting • u/Emergency_Tough_7953 • 1d ago
8yr old move from Mainstream to SEND unit school
r/specialneedsparenting • u/maple788797 • 1d ago
How can I best support? Delayed student w/ cognitive disabilities
Look I’m not 100% if this will be relevant here but if any parents have put in the work and done additional learning at home please give me some advice.
I feel lost and so so stressed, even just to know I’m heading in the right direction is a huge help.
r/specialneedsparenting • u/Longjumping_Wafer900 • 1d ago
Has anyone homeschooled their severe AuDHDer and made progress?
r/specialneedsparenting • u/SweatyConfection4892 • 2d ago
Learning how to navigate as a parent with my Mosaic Down Syndrome.
I am trying to balance my own unique developmental and processing profile while managing my daily routines so I can help myself more. The hardest aspect by being restless is I am always on the go where I want to build my day around it. Instead of me fighting my need for movement.
I always ask myself what part of my routine feels most frustrating when I feel restless? It’s an ongoing work of progress meaning I need to focus on being productive and getting help for those that are great listeners and have patience with me. Being born with this rare disease there are less than one percent in this world and I am still learning on how to navigate this disease on my own.
r/specialneedsparenting • u/ElizabethWynterFL • 1d ago
Florida Families: Pediatric Medical Daycare & Support at Wonderland PPEC in Tamarac 💙
💙 Florida Families: Have You Heard of Wonderland PPEC in Tamarac, FL?
I wanted to share a resource that may be helpful for parents and caregivers of children with complex medical needs or special needs.
🏥 Wonderland PPEC provides pediatric medical daycare services designed to support eligible children while helping families manage their daily care needs.
Some services families can ask about include:
- 👩⚕️ Skilled pediatric nursing care
- 🩺 Therapy and developmental support
- 🎨 Educational, recreational, and social activities
- 🍽️ Meals and daily care support
- 🚌 Transportation options
- ♿ Assistance navigating medical equipment and supplies
- 💙 Help understanding enrollment, Medicaid coverage, and required authorizations
📍 Location: 6463 W. Commercial Boulevard, Tamarac, Florida 33319
📞 Phone: 954-590-0097
🌐 Website: https://www.wonderlandppec.com/
Families should contact the center directly to confirm eligibility, current services, insurance coverage, and transportation availability.
If you're a parent or caregiver looking for additional support for your child, this may be worth checking out. Feel free to share this with other Florida families who might find it useful! 💙
#FloridaFamilies #PPEC #PediatricCare #SpecialNeedsSupport
r/specialneedsparenting • u/CheekiKat100 • 1d ago
Looking for a special education attorney who is aggressive
r/specialneedsparenting • u/Ready-Jaguar8585 • 2d ago
Choosing the right school
Hi all. I have a son who is now 4 who is waiting on an autism assessment and his EHCP. The paediatrician has informally said he is ASD with ADHD which is no surprise. My question is around schools as he will start in reception next September.
My daughter goes to a fantastic school which has been very lukewarm when I/my partner have tried to get info on the support they could offer ("we recommend going to see lots of schools and see which feels right" etc.). I am going to do their tour again to ask specific questions but honestly, it doesn't feel like it could be the best place for him.
Without any real guidance on how to go about this, I looked up all the local schools with special resource provision and have been visiting the ones that look viable, given that it would mean two drop offs and pick ups each day. What I am struggling with is knowing what would be the best environment for him, especially from 10 months from now! His main areas of support would be language, attention and comprehension. In the schools with special provision we have seen so far, the children have much higher needs.
My partner's preference is to have him in a mainstream school with some support so he can learn from the other children as well - this makes sense to me, but knowing how much support he needs is difficult. I don't want him to go somewhere we are optimistic about only to find it is the wrong environment and he isn't learning anything/needs to change schools later on.
r/specialneedsparenting • u/Worldly-Somewhere-14 • 2d ago
My name is Joe and my family‘s documentary is coming out soon with stories made with love. I hope everybody can be aspired by God bless.
God bless
r/specialneedsparenting • u/CheekiKat100 • 1d ago
Looking for a special education attorney who is aggressive
r/specialneedsparenting • u/criley654 • 2d ago
ABA Therapy Help - My 3 1/2 year old son was just diagnosed with autism.
r/specialneedsparenting • u/Sudden_Quality_9001 • 2d ago
Why don't you teach your kids about people who have special needs?
I have seen posts on r/Autismparenting where kids are bullying ND kids. As someone who is in special ed why don't you teach your kids that Gabby has Down Syndrome but she likes the same shows as you or Luke has Autism he likes the same books as you or Priya has Cerebral Palsy she likes to play sports too.
I think that elementary school kids is the age this post applies to. If Miguel is autistic and loves to swing have your kid play with him.
r/specialneedsparenting • u/Greedy-Rate8851 • 2d ago
The SEN Den - parents supporting parents.
r/specialneedsparenting • u/Bubbly-Confidence-60 • 3d ago
My appointment
I have my check up with my pcp this week and I’m dreading it. I’m obese, diabetic, exhausted and went from running half marathons to now struggling to fit in a 30 minute walk most days. Hubby and I adopted 3 kids from foster care. Oldest is disabled, youngest has big special needs. Hubby is older, tired and cranky to the extreme. He’s the SAHP and is not functioning lately. Add to that my middle child’s mental health crisis that erupted a month ago.
I work full time. My husband used to do meals, drop offs, and appointments. I’m doing it all now. I’m doing everything but dinner and cleaning and laundry which is also falling by the wayside.
How do I explain to my doctor in the scheduled 15 minute office visit that there’s no fix. If I’m not up by 4:30 am, I’m falling behind. I go to bed at 8, usually 1-2 hours after the last appointment of the day and have panic attacks waking me up. There’s no increase in my medicine or additional therapy for me that can fix three kids who needs are beyond what I - single married mom- can reasonably do AND take care of myself. We are juggling 5-12 appointments a week. You can’t add another med to my list when I can’t remember to take it. I can’t take pto for myself when it all goes to the kids. I can’t make my husband pull his head out of his behind and do the steps for him to recover from his burnout. Our so called safety net is one person. Everyone else died, moved or dropped out of our lives.
I don’t want to hear about my weight or my blood sugar. I am trying to keep my head above water (on 3 hours of sleep.) Everyone needs me, now! Work and home. To add to it, the hubby wakes me up to tell me his former manager died and railed on how “he didn’t take care of himself.” I’m so tempted to cancel because if I hear the tiniest criticism I may just fall completely apart.
r/specialneedsparenting • u/tealchristmas • 3d ago
Need advice
Yesterday my 4 year old son was seen by a team of specialists including neurology and neurosurgery. They are recommending a baclofen pump for his severe dystonia and spasticity. We are currently on artane and gabapentin with botox injections every 3-5 months but none of these medications help much. In order to be a candidate for the baclofen pump he has to gain weight - he's only 29 pounds despite our best efforts.
A g-tube was brought up for the first time in his life.
We haven't been seen by GI in years but just so happen to have an appointment already scheduled next month.
Has anyone else's child had a g-tube or baclofen pump put in around this age? I'm worried that both could cause pain and other issues as he is a very active boy in spite of his limitations and scoots all over the house on his tummy playing all day long. He does NOT like being sedentary.
I am feeling devastated after this appointment yesterday. I have always been so grateful that he isn't as medically complex as many other kiddos with CP are but now the future feels daunting.
r/specialneedsparenting • u/feelingswaggy • 2d ago
Questions about child care
Hey guys! Sorry if this is a strange post, but I am in school to be a special education teacher and I have an assignment to interview a parent of a child with special needs. If anyone would be interested in helping me out and answering some questions I would really appreciate it!
- Description of this child's special needs and name of syndrome or disorder. Include information about any Physical challenges, Intellectual challenges, Emotional challenges, and Social challenges.
- Equipment, medications, and therapies are needed to address this child’s challenges.
- Activities the child enjoys.
Include adaptations that are made so the child can participate in the activities.
- What kinds of skills are required of those caring for the needs of the child?
- Who cares for the child (education, physical needs, entertainment)?
- How has your life been impacted by your special needs child?
- What is school like for your child? Is there anything you would change?
- Does your child's school provide proper communication about their care for the child? How often do you get reports and updates on your child?