I just wanted to say people in this group must be so resilient. I see lots of people going through the same route I took (going from doctor to doctor, getting ignored, trying everything under the sun to feel better,etc). I am still searching for the cure (10+years now), but I got to the point that I have to divide my sibo life from my normal life even if just in my imagination. Accept the fact that I have it and try to make the best of the other aspects of my life. To give you perspective I had the worse SIBO flare during my wedding day, but I did everything to not focus on it and enjoy the day regardless. Anyways, just wanted to share some hope and that I know what everyone is going through and how hard and hopeless it is. Please share how you are dealing with the mental burden so we can all learn from each other. And sending some love because we all need it ❤️

I’m at the point of having suicidal thoughts due to chronic halitosis from I believe SIBO, I’m exhausted trying to get rid of it- I can’t be in the same room as anyone…

Eat only the following food items for every meal for 2-3 days and report back on whether it helped symptoms. It's the only thing that works for me, and it works well.

Protein 

- seasoned only by you with herbs and spices - no garlic or onion - combine them yourself - no blends

- either animal protein (normal portion) OR firm tofu (100g max)

Carrot (orange ones).

Jasmine rice (1/2 cup cooked).

Drink water as normal. No other beverages. Leave an hour after eating before drinking.

Disclaimer: do not do this if you have reason to believe this diet would harm you. This is a short term test, not a long-term diet.

https://www.reddit.com/r/SIBO/s/QZBW2WAKkh taken from the transcript of his latest Q&A

Hydrogen only here that gets up to 84 ppm (although I took this test as I was recovering from diarrhea caused by multi-strain probiotics).

My root cause was a Campylobacter food poisoning back on March, and in May I got symptoms. It has been 5 months and I have lost 10 kg. Other infectious root causes have been ruled out. I even tried broad spectrum antiparasitics in June and it only worked as long as I took it (3 days) and then my stool went back to yellow.

Main SIBO symptoms is excessive gas and gurgling in Small intestine, yellow stools that turns into diarrhea when eating an intolerance, gastritis and burping. And whenever I eat something fiber or fat specific, I feel issues in the ileocecal valve. So I am sure I also have some BAM caused by dysbiosis in the ileum from the Campylobacter.

Mostly have fat, lactose and fiber intolerance. Probiotics don’t help. Mostly eat chicken, rice, vegetables, potatoes, green plantains and blueberries. Have had to give up eggs and oregano recently because of the fat intolerance. Now I am even starting to get B12 deficiency symptoms from the malabsorption.

If you ask why I haven’t tried Rifaximin yet, it’s because I feel my microbiome has had too much damage, both inherited and in my life [mom antibiotics as a child, parents both had H pylori and took quad therapy, at 2 year old I got Giardia, recurrent food poisonings as a toddler which made me lose weight too but recovered from, prior antibiotic use over the years (1 course of Clindamycin, 5 courses of mostly Azythromycin all my life but still too much in my opinion)].

Also, the people reporting permanent side effects (from complete protein and fat intolerance to MCAS and even anhedonia) are not encouraging, and I don’t believe they are an exception as many say here. And if they are, then I think my profile is sadly closer to them.

(Btw, Rifaximin not being absorbed and all is not a guarantee of safety, most of the bad outcomes are food intolerances because of it exclusive effect on the gut, which DOES indirectly affect the body systemically).

So, with this in mind and considering the severity of my situation, I have contemplated biting the bullet, but then I read the latest Q&A transcript from Dr. Pimentel and I honestly feel less confident with his one minded approach. Apparently, I fit his idea of a “severe over-the-top SIBO” patient.

I am not a patient of his nor live in the US, but if I did, I am pretty sure that he would give me multiple Rifax courses and that is a NO GO. So, if the case is that I do have the anti-vinculin antibodies, then doing the multiple courses would be a horrible idea and would nuke my microbiome even more.

I am sorry, but I don’t think I would benefit from the killing approach. I dread when I get an endoscopy too, because if it appears I have H pylori too, I will get the quad therapy and then I am cooked.

My current approach is try to address the nutrient deficiencies and see if trying Cholestyramine might help me gain some weight and tolerate fat. But I am running out of time…

so yea, basically the title. Me (f24) and my mom both have gut issues, the symptoms for us are:

-diahrea/constipation a lot of the time

-tons of gas. either looking like a pregnant lady and feeling full or constantly releasing gas throughout the day. mostly odorless but occasionally very foul smelling

-low appetite (because the gas makes us feel full very quickly)

-constant stomachs noises (rumbling, bubbling etc)

were kinda broke so she paid me half the money to take the test and said, if you get positive ill just take whatever they prescribe u as well. but now what? took the glucose test and it says im within all medians but im definitely not healthy… also had endoscopy, colonoscopy ct scan bloodwork done, all of them completely normal. no h pylori no celiac.

what else is there to try? at this point strongly considering just nuking my gut with antibiotics and hoping for the best, this shit makes dating impossible, even being with friends is awkward if my stomach’s gonna be acting up.. just need advice 😭

Prucalopride worked really well in the beginning, but it does build a tolerance. It doesn’t stop working just not as good as before and things start slowing creating symptoms, even if I have a BM.

Was traveling in Asia and found this novel/random med. It works by letting more bile acid go down the small intestine. Blocks some of its reabsorption/recycling in the SI.

Anyone with experience with this medicine? Just putting it out there.

Has anyone had sibo but no diarrhea or constipation? If so what were your levels?

Has anyone found success with shorter courses of Rifaximin, e.g 3 days?

Backstory: I've had a previous positive SIBO result but past 2 tests were negative (including a negative Triosmart).

Never took Rifaximin although I was offered a 2 week treatment. But I'm still sensitive to fodmaps (bloating + diarrhea, and even fiber triggers diarrhea), and stool test results find overgrowth bacteria.

I'm hesitant to take rifaximin because some people have reported taking it, getting worse, and have never recovered. Thinking of a compromise where I take it for 3 days.

Hey everyone,
I've been taking a high-dose B-complex recently, and I keep getting these nasty burps with a strong chemical aftertaste afterwards.
I tried changing how I take it - taking it right at the beginning of a meal, right in the middle, or right at the end - but it doesn't seem to make any difference. A while after taking it, I still get that distinct chemical "vitamin" burp.
Does anyone else experience this with high-dose B vitamins? Is there any trick to prevent it, or is this just something you have to deal with when taking B-complexes?

buenos días! voy a empezar una segunda ronda de tratamiento para sibo sulfuro en la cual está vez me han pautado sustrato de bismuto, rifaximinia, Metronidazol, y ronda de herbáceos. mientras hago el tratamiento me ha recetado también resolor (prucaloprida) esta especialmente indicada para el estreñimiento crónico. El tema es que mi doctor comentó que hay que usarlo tanto durante el tratamiento como en la fase de después de la erradicación y así evitar que los desechos se acumulen en el intestino delgado y asegurarse de que la motilidad y el complejo motor migratorio funcionen correctamente. de todas formas el tema es q mis síntomas son bastante más tendenciosos a las heces blandas que a al estreñimiento lo cual antes de empezar con éste procinetico no me hacía mucha gracia tomarlo. empecé a tomarlo hace tres días y hoy he decidido no tomarlo más, unos gases terribles, cólicos y unas molestias que ocupan el 70 por ciento del día, los gases con olor se han incrementado muy agresivamente, hasta la hora de ir a dormir ayer estuve teniendo gases constantes, además unas deposiciones diarreicas, heces pastosas sín a penas forma y con olor terrible la penúltima, además de que justamente todo esto se ha juntado con un proceso vírico que tuve esta semana atrás y ha sido todavía peor, entreno fuerza y trabajo en la obra, está semana no puedo a penas con el peso de siempre, la diarrea y la inflamación de los gases sulfurosos te quitan mucho, me noto menos voluminoso y algo más flacido, además que este procinetico me ha dejado con bastante fatiga y cansancio, hoy desdé luego no habiendolo tomado me veo bastante mejor.

alguien me puede recomendar algún procinetico natural ?

alguna marca buena de extracto de jenjibre, alcachofa ect??

Got rifaximin to try out from somewhat uninformed doctor in Asia. She prescribed for 2x day 550mg.

Sources from the web (Dr. Pimentel) always list 3x day protocols.

How important is this?

just curious, for other people who have sibo & get periods, what are your symptoms like throughout your cycle (especially during the bleeding days)? all i've figured out so far for me is that luteal slows my digestive system lol. curious about other people's experiences!

Has anyone experienced any eye dermatitis or eyelid dermatitis/eczema with SIBO? I’ve never had any issues with skin problems before and I’ve had eye issues since about a month ago. I’ve suspected SIBO since about February. I’ve lived with cats for 3 years, have not changed any lotions, shampoos, body washes, laundry detergents etc for a long time.

Doctor told me to take Zyrtec and use Aquaphor. I have itchiness and red blotting mostly under my eye. I am not allergic to anything as far as I know. If it does not go away, I’ll have to move forward and see a dermatologist.

I’m assuming it’s leaky gut or something to do with SIBO.

Thanks to anyone who replies.

Now once a month I have what feels exactly like food poisoning overnight and it starts with sour burps and pain in the middle of my upper abdomen. What does that sound like to you?

Symptoms:

Persistent mild upper ab discomfort.
Lower ab pain through the night ~ 7 hours after eating.
Lots of burping.
Slightly elevated amylase/lipase.

Clean endoscopy x2, colonoscopy, MRCP.

Stool test showed no bifido or lactobacillus.

Is a SIBO test the next obvious step? Doctors are baffled. Also in waiting for an EUS.